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North Carolina

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North Carolina State Ambassador Needed
Interested in learning about the State Ambassador Program and how to apply?Click Here 

What's Happening Now?

EducationalPlease join the North Carolina Rare Action Network for a free luncheon Thursday, December 7, 2017 in Raleigh, North Carolina. This networking luncheon provides the opportunity to learn all about RAN and meet the NORD RAN team. For more information and to register CLICK HERE.

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for North Carolina’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in North Carolina.

In order to make meaningful change in the lives of rare disease patients and their families in the state of North Carolina, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

NC State Report Card (2016)
Medical Foods 40%
Prescription Drug Cost Sharing 0%
Medicaid/CHIP Eligibility 43%
Newborn Screening: RUSP Secondary Conditions 60%
Biosimilar Prescriber Communication 100%
Step-Therapy Protection 0%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Mike Causey, Commissioner

North Carolina Department of Insurance
1201 Mail Service Center
Raleigh, North Carolina 27699-1201

919-733-3058

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

800-546-5664 (toll free in N.C.) or 919-807-6750

State Health Insurance Consumer Assistance Program

North Carolina Department of Insurance
Health Insurance Smart NC
1201 Mail Service Center
Raleigh, NC 27699-1201

Consumer Assistance Program Contact
877-885-0231 (toll free) 919-807-6860

Show pride for rare in your state
Show pride for rare in your state

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