New Jersey State Ambassador
What's Happening Now?
Please join New Jersey Rare Action Network for Rare Disease Day in Trenton on Monday, March 5, 2018 from 8:30am-3:30pm at the New Jersey Museum. This is an opportunity for patients, families, caregivers, medical professionals and industry representatives to come together and educate state legislators and their staff about rare diseases and the challenges patients and their families face in the state. CLICK HERE TO REGISTER TODAY!
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for New Jersey’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in New Jersey.
In order to make meaningful change in the lives of rare disease patients and their families in the state of New Jersey, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.
NJ State Report Card (2016)
Scoring for State Policies
90%-100% = A
80%-89% = B
70%-79% = C
60%-69% = D
0%-59% = F
Richard J. Badolato, Commissioner
State of New Jersey
Department of Banking and Insurance
20 West State Street PO Box 325
Trenton, New Jersey 08625-0325