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New Jersey

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New Jersey State Ambassador Needed
Interested in learning about the State Ambassador Program and how to apply?Click Here 

What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for New Jersey’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in New Jersey.

In order to make meaningful change in the lives of rare disease patients and their families in the state of New Jersey, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

NJ State Report Card (2016)
Medical Foods 95%
Prescription Drug Cost Sharing 0%
Medicaid/CHIP Eligibility 90%
Newborn Screening: RUSP Secondary Conditions 100%
Biosimilar Prescriber Communication 100%
Step-Therapy Protection 0%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Richard J. Badolato, Commissioner

State of New Jersey
Department of Banking and Insurance
20 West State Street PO Box 325
Trenton, New Jersey 08625-0325

609-292-7272

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

State Health Insurance Consumer Assistance Program

The Office of the Insurance Ombudsman
NJ Department of Banking and Insurance
20 West State Street
PO Box 472
Trenton NJ 08625-0472

1-800-446-7467

Ombudsman Email: ombudsman@dobi.state.nj.us
Ombudsman Website

Show pride for rare in your state
Show pride for rare in your state

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