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Jen O’Connor
Michigan State Ambassador

What's Happening Now?

Please join Michigan Rare Action Network for Rare Disease Day in Lansing on Thursday, March 8, 2018 from 11:00am-12:30pm at the Michigan State Capitol. This is an opportunity for patients, families, caregivers, medical professionals and industry representatives to come together and educate state legislators and their staff about rare diseases and the challenges patients and their families face in the state.  CLICK HERE TO REGISTER TODAY!

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Michigan’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Michigan.

Michigan needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance  or have additional questions on how to take action in Michigan, please contact your State Ambassador, Jen O’Connor.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

MI State Report Card (2016)
Medical Foods 35%
Prescription Drug Cost Sharing 0%
Medicaid/CHIP Eligibility 90%
Newborn Screening: RUSP Secondary Conditions 91%
Biosimilar Prescriber Communication 0%
Step-Therapy Protection 0%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Patrick McPharlin, Director

Dept. of Insurance & Financial Services
PO Box 30220
Lansing, Michigan 48909-7720


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Complaint Submission- Mail this form to:

DIFS Consumer Services
P.O. Box 30220
Lansing, MI 48909-7720

Email for Assistance:

State Health Insurance Consumer Assistance Program
Consumer Assistance Program Email:

Kaiser State Exchange Profile
State Reforum State Profile
State Health Insurance Website


Capitol View Building
201 Townsend Street
Lansing, Michigan 48913


Medicaid Website
Eligibility Requirements

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Show pride for rare in your state
Show pride for rare in your state

Program Sponsors

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Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
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NORD Links


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