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Louisiana State Ambassador Needed
Interested in learning about the State Ambassador Program and how to apply?Click Here 

What's Happening Now?

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Louisiana’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Louisiana.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Louisiana, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

LA State Report Card (2016)
Medical Foods 80%
Prescription Drug Cost Sharing 80%
Medicaid/CHIP Eligibility 25%
Newborn Screening: RUSP Secondary Conditions 8%
Biosimilar Prescriber Communication 100%
Step-Therapy Protection 0%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

James J. Donelon, Commissioner

Louisiana Department of Insurance
PO Box 94214
Baton Rouge, Louisiana 70804-9214


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

800-259-5300 or 225-342-5900
Email for Assistance:

State Health Insurance Consumer Assistance Program
Ron C. Henderson, Deputy Commissioner of Consumer Advocacy

Consumer Assistance Program Email:

Kaiser State Exchange Profile
State Reforum State Profile
State Health Insurance Website


P.O. Box 91278
Baton Rouge, LA 70821-9278

Email for Assistance:

Medicaid Website
Eligibility Requirements
Medicaid Appeal Process (Appeals can also be covered through Marketplace)

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Show pride for rare in your state
Show pride for rare in your state

Program Sponsors

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Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
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NORD Links


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