Donate Now

Join RAN


Patrick Dunegan
Kentucky State Ambassador

What's Happening Now?

ky-150x150On August 10, 2018 visit the Kentucky RAN at Jewish Hospital, 200 Abraham Flexner Way, Louisville, KY from 10am-2pm where they will be hosting an information booth.  For more information contact your Kentucky state ambassadors.

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Kentucky’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Kentucky.

Past Events

Kentucky RAN Ambassador Patrick Dunegan and his wife Jennifer hosted some information tables in their local community to bring awareness to rare diseases and the Kentucky Rare Action Network.



Rare Action Network Kentucky attended the 27th Anniversary of the Americans with Disabilities Act Disability Pride and Resource Fair on July, 22nd in Louisville, KY.
Below, Kentucky advocates rally to get their voices heard by Senators Mitch McConnell and Rand Paul. Dear Senators, please protect Medicaid and defend pre-existing conditions!

In order to make meaningful change in the lives of rare disease patients and their families in the state of Kentucky, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

In this third edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.

Scoring for State Policies

A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.

B: State policy meets most, but not all desired standards

C: State policy on the given issue meets minimum standards

D: State has some policy in place, but it does not meet the standards of higher tiers

F: State has no policy provision for the relevant issue

State Information

Nancy G. Atkins, Commissioner

Kentucky Department of Insurance
PO Box 517
Frankfort, Kentucky 40602-0517


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

800-595-6053 (KY only)
or 502-564-6034
Email for Assistance: or

State Health Insurance Consumer Assistance Program

Brian K. Staples, Health Insurance Advocate/Ombudsman
P.O. Box 517
Frankfort, KY 40602

Ombudsman Email:
Ombudsman Website

Show pride for rare in your state

Program Sponsors

Genentech Logo

Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
View All Sponsors

NORD Links


Rare Disease Day Logo

Running4Rare Logo