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What's Happening Now?

Please join California Rare Action Network for Rare Disease Day in Sacramento on Wednesday, February 28, 2018 from 10:00am-3:00pm at the California State Capitol. This is an opportunity for patients, families, caregivers, medical professionals and industry representatives to come together and educate state legislators and their staff about rare diseases and the challenges patients and their families face in the state.  CLICK HERE TO REGISTER!

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for California’s Rare Action Network to attend your event? Contact your State Ambassadors today and learn more. Please check back regularly for news of upcoming events and activities in California.

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Vanessa Puopolo
California State Co-Ambassador


Erin Delman
California State Co-Ambassador

In order to make meaningful change in the lives of rare disease patients and their families in the state of California, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

This Report Card serves as an evaluation of the state progress in implementing policies pertinent to the rare disease community. With it, NORD hopes to provide a road map for the rare disease community of where each state can improve and, ultimately, push forward the discussion on rare disease public policy.

CA State Report Card (2016)
Medical Foods 100%
Prescription Drug Cost Sharing 80%
Medicaid/CHIP Eligibility 90%
Newborn Screening: RUSP Secondary Conditions 80%
Biosimilar Prescriber Communication 100%
Step-Therapy Protection 100%

Scoring for State Policies

90%-100% = A

80%-89% = B

70%-79% = C

60%-69% = D

0%-59% = F

State Information

Dave Jones, Commissioner

California Department of Insurance
300 Capitol Mall, Suite 1700
Sacramento, California 95814


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission
1-800-927-HELP (4357) or 1-213-897-8921

State Health Insurance Consumer Assistance Program

California Department of Insurance
Office of the Ombudsman
300 Capital Mall Suite 1600
Sacramento California, 95814

916- 492-3545

Marketplace Structure: State

TTY: 1-888-889-4500
Exchange Email:

Marketplace Website
Enrollment Options
Plan Information
Estimate My Cost

Benefits Offered Under the Marketplace:
Essential Health Benefits
State-Required Benefits

Kaiser State Exchange Profile

State Reforum State Profile


1501 Capitol Avenue
Sacramento, CA 95814


Medicaid Website
Eligibility Requirements

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

Show pride for rare in your state
Show pride for rare in your state

Program Sponsors

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Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
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