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What's Happening Now?

EducationalPlease Join Us for an Advocacy Workshop! 

The National Organization for Rare Disorders invites all advocates to attend and participate in the Rare Action Network Advocacy Workshop on September 11, 2018 in Anaheim, California from 9am-1pm. This is a free meeting that will give attendees the opportunity to connect, learn, and share with other patient organization leaders and advocates.

CLICK HERE TO REGISTER!

Vanessa Puopolo
California State Co-Ambassador
vanessa.puopolo@rareaction.org

Erin Delman
California State Co-Ambassador
erin.delman@rareaction.org

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for California’s Rare Action Network to attend your event? Contact your State Ambassadors today and learn more. Please check back regularly for news of upcoming events and activities in California.

Stanford & UCLA
Undiagnosed Disease Network

The Undiagnosed Diseases Network (UDN) is a research study funded by the National Institutes of Health Common Fund, made up of medical and research centers across the United States working to improve diagnosis and care of patients with undiagnosed diseases. Through this study, we hope to both help individual patients and families and contribute to the understanding of how the human body works.

Due to the complex nature of the body and the diseases being investigated, we cannot accept all applicants into the study. However, we do fully review all applications we receive. For more information about the UDN and the application process, please visit:

Stanford –  https://undiagnosed.stanford.edu/
UCLA – genetics.ucla.edu/udn

In order to make meaningful change in the lives of rare disease patients and their families in the state of California, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

In this third edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.

Scoring for State Policies

A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.

B: State policy meets most, but not all desired standards

C: State policy on the given issue meets minimum standards

D: State has some policy in place, but it does not meet the standards of higher tiers

F: State has no policy provision for the relevant issue

State Information

Dave Jones, Commissioner

California Department of Insurance
300 Capitol Mall, Suite 1700
Sacramento, California 95814

916-492-3500

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission
1-800-927-HELP (4357) or 1-213-897-8921

State Health Insurance Consumer Assistance Program

California Department of Insurance
Office of the Ombudsman
300 Capital Mall Suite 1600
Sacramento California, 95814

916- 492-3545

Marketplace Structure: State

1-800-300-1506
TTY: 1-888-889-4500
Exchange Email: outreach@covered.ca.gov

Marketplace Website
Enrollment Options
Plan Information
Estimate My Cost

Benefits Offered Under the Marketplace:
Essential Health Benefits
State-Required Benefits

Kaiser State Exchange Profile

State Reforum State Profile

Medicaid

1501 Capitol Avenue
Sacramento, CA 95814

916-552-9200

Medicaid Website
Eligibility Requirements

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

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