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All Events

Here you can find all upcoming events, physical and virtual.

Upcoming Events

5K to Fight Histio

July 21, 2019

8:00 am - 1:00 pm

Pier 84, Hudson River Park
New York, NY

HLH Patient-Family and Physician Conference

July 22, 2019

12:00 pm - 2:00 pm

New York Marriott Marquis, 7th Floor
New York, NY

Strides for Lives 5K Run/Walk

July 28, 2019

9:00 am - 11:00 am

South Williamsport Community Park
South Williamsport, PA

When My Norm Became Rare Lissencephaly Awareness Luncheon

September 07, 2019

1:00 pm - 4:00 pm

La Quinta Inn & Suites by Wyndham Hinesville – Fort Stewart
Hinesville , GA

3rd Annual World Congress: Delivering Therapies to the Clinic Faster

September 23, 2019 - September 24, 2019

8:00 am - 4:00 pm

Kimpton Marlowe Hotel
Cambridge, Massachusetts

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Rare Disease Day Logo

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