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All Events

Here you can find all upcoming events, physical and virtual.

Upcoming Events

Mississippi Rare Disease Day 2019

February 19, 2019

8:00 am - 12:00 pm

Mississippi State Capitol, West Wing
Jackson, Mississippi

Georgia Rare Disease Day

February 22, 2019

9:00 am - 11:30 am

Georgia State Capitol, South Wing
Atlanta, Georgia

Arkansas Rare Action Network Patient Advocacy & Orphan Drug Workshop

February 23, 2019

8:30 am - 3:00 pm

Hilton Garden Inn West Little Rock
Little Rock, Arkansas

Texas Rare Disease Day 2019

February 23, 2019

9:00 am - 1:00 pm

The Health Museum
Houston, Texas

Illinois Rare Disease Day 2019

February 27, 2019

10:00 am - 3:00 pm

The Inn at 835
Springfield, Illinois

Kentucky Rare Disease Day 2019

February 27, 2019

12:30 pm - 1:30 pm

Kentucky State Capitol, Rotunda
Frankfort, Kentucky

Connecticut Rare Disease Day 2019

February 28, 2019

8:30 am - 11:00 am

Legislative Office Building, 2nd floor Atrium
Hartford, Connecticut

California Rare Disease Day 2019

February 28, 2019

9:30 am - 1:00 pm

California State Capitol, Capitol Steps
Sacramento, California

Florida Rare Disease Day 2019

February 28, 2019

10:00 am - 1:30 pm

Heart of Florida United Way, Dr Phillips Conference Room
Orlando, Florida

Ohio Rare Disease Day 2019

February 28, 2019

10:00 am - 2:00 pm

Ohio State House, Governor Thomas Worthington Center
Columbus, Ohio

Arizona Rare Disease Day 2019

February 28, 2019

11:30 am - 2:00 pm

Arizona State Capitol (Rare advocates to meet on the brick pavers in front of the golden dome at the Arizona State Capitol Museum near monument marker E, Congressional Medal of Honor Recipients)
Phoenix, Arizona

Washington Rare Disease Day 2019

February 28, 2019

12:00 pm - 1:00 pm

Washington State Campus, Spokane Campus, Room SAC20
Spokane, Washington

Oklahoma Rare Disease Day 2019

February 28, 2019

1:00 pm - 3:30 pm

Oklahoma State Capitol, 4th Floor Rotunda
Oklahoma City, Oklahoma

Maryland Rare Disease Day 2019

February 28, 2019

6:00 pm - 8:00 pm

Bernard W. Brown Community Center
Frederick, Maryland

Wisconsin Rare Disease Day 2019

March 02, 2019

11:00 am - 2:00 pm

Zablocki Pavilion
Greenfield, Wisconsin

Rare KC Summit 2019: Innovating a Rare Center of Excellence

March 04, 2019

8:00 am - 8:30 am

Ewing Marion Kauffman Foundation
Kansas City, Missouri

Oregon Rare Disease Day 2019

March 07, 2019

9:00 am - 10:30 am

World Trade Center Portland
Portland, Oregon

Michigan Rare Disease Day 2019

March 07, 2019

10:30 am - 12:00 pm

Radisson Hotel Lansing at the Capitol, Banquet room, 2nd floor
Lansing, Michigan

New Hampshire Rare Disease Day 2019

March 07, 2019

11:00 am - 2:00 pm

New Hampshire State Capitol, Cafeteria
Concord, New Hampshire

California Rare Action Network Patient Advocacy & Orphan Drug Workshop

March 09, 2019

8:30 am - 3:00 pm

Hyatt Regency Sacramento
Sacramento, California

New Jersey Rare Disease Day 2019

March 11, 2019

8:30 am - 3:00 pm

New Jersey State Museum, Main Room
Trenton, New Jersey

Minnesota Rare Disease Day 2019

March 12, 2019

1:00 pm - 2:00 pm

Minnesota State Capitol, Rotunda
St. Paul, Minnesota

Louisiana Rare Disease Day 2019

April 08, 2019

10:00 am - 2:00 pm

Louisiana State Capitol, Rotunda
Baton Rouge, Louisiana

Pennsylvania Rare Disease Day 2019

May 07, 2019

10:00 am - 2:00 pm

Pennsylvania State Capitol
Harrisburg, Pennsylvania

Hoofbeats 5k

June 01, 2019

9:00 am - 11:00 am

NHTI, Concord’s Community College
Concord, New Hampshire

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