News
FDA CBER Director Dr. Vinay Prasad to Keynote NORD’s Inaugural Rare Disease Scientific Symposium, Convening Top Researchers, Industry Leaders, and Federal Regulators
WASHINGTON, May 23, 2025 --The National Organization for Rare Disorders (NORD®) will convene leading voices...
Read more
In Honor of Eddie — A Story of Courage, Love, and an Unbreakable Bond
For MPS Awareness Day, May 15 By Debra Bell, mother of Eddie James Bell Jr....
Read more
Montana Establishes Rare Disease Advisory Council to Support Residents Living with Rare Conditions
NORD’s advocacy helps Montana become 32nd state to create a dedicated council HELENA, MONT., May 14,...
Read more
Arizona Becomes the 31st State With a Rare Disease Advisory Council
New State Council Will Help Shape Health Policies for Arizonans Living with Rare Diseases PHOENIX,...
Read more
Honoring Nurses on International Nurses Day: The Bridge Between Rare Disease and Hope
By Alicia Truelove, MSN, RN, CV-BC, NPD-BC International Nurses Day, May 12, is a time...
Read more
#UndiagnosedLife: An Ode to My Wingman on My Diagnostic Odyssey
By Christine McGarvey, NORD Rare Action Network Ambassador for Pennsylvania I have been on a...
Read more
#UndiagnosedLife: An Ode to My Wingman on My Diagnostic Odyssey
By Christine McGarvey, NORD Rare Action Network Ambassador for Pennsylvania I have been on a...
Read more
Rare Faces of Medicaid: What’s at Stake for the Rare Community?
Congress is currently considering potentially sweeping funding cuts to Medicaid, a program that provides life-saving...
Read more