News
In Honor of Eddie — A Story of Courage, Love, and an Unbreakable Bond
For MPS Awareness Day, May 15 By Debra Bell, mother of Eddie James Bell Jr....
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Montana Establishes Rare Disease Advisory Council to Support Residents Living with Rare Conditions
NORD’s advocacy helps Montana become 32nd state to create a dedicated council HELENA, MONT., May 14,...
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Arizona Becomes the 31st State With a Rare Disease Advisory Council
New State Council Will Help Shape Health Policies for Arizonans Living with Rare Diseases PHOENIX,...
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Honoring Nurses on International Nurses Day: The Bridge Between Rare Disease and Hope
By Alicia Truelove, MSN, RN, CV-BC, NPD-BC International Nurses Day, May 12, is a time...
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#UndiagnosedLife: An Ode to My Wingman on My Diagnostic Odyssey
By Christine McGarvey, NORD Rare Action Network Ambassador for Pennsylvania I have been on a...
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#UndiagnosedLife: An Ode to My Wingman on My Diagnostic Odyssey
By Christine McGarvey, NORD Rare Action Network Ambassador for Pennsylvania I have been on a...
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Rare Faces of Medicaid: What’s at Stake for the Rare Community?
Congress is currently considering potentially sweeping funding cuts to Medicaid, a program that provides life-saving...
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Undiagnosed: Medical Students Work to Change Rare Disease Curriculum
In honor of Undiagnosed Day on April 29, the National Organization for Rare Disorders (NORD)...
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