News
Giving in a Changing Landscape: Why 2025 Matters for Rare Disease Families
In July 2025, Congress enacted one of the most significant federal tax reforms in recent...
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NORD CEO Statement on Rare Cancer Day
Today, on Rare Cancer Day, I am proud to recognize the 30 organizations that make...
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From Patient 3737 to Advocate: The Life-Changing Power of Clinical Trials
By Melinda Bachini of the Cholangiocarcinoma Foundation In April 2012, I walked into the National...
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NORD Unveils New, Free Data Literacy Course
"From Records to Research” empowers patients, caregivers to take control of their health The National...
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NORD’s 2025 Rare Diseases & Orphan Products Breakthrough Summit to Spotlight CEOs, Investors, and Regulatory Leaders Driving Innovation
WASHINGTON, D.C., Aug. 21, 2025 — The future of rare disease care and innovation will...
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Advait Wattal’s Journey to Make a Difference
Advait Wattal, a student advocate and NORD State Ambassador, shares how his commitment to public...
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Raising Awareness of GPP: Jimmy’s Story
In honor of Generalized Pustular Psoriasis (GPP) Awareness Day, coming up on Aug. 13, this...
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Community Recap: Living Rare, Living Stronger in Georgia
For years, the National Organization for Rare Disorders (NORD®) Living Rare, Living Stronger® event has...
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