News
NORD, Bionews Partner to Bring Powerful Educational Content to Rare Disease Communities
New Mental Health Video Series Launches February 24 The National Organization for Rare Disorders (NORD®)...
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NORD’s Latest Annual State Report Card Provides Crucial Benchmark as State Legislative Sessions Resume
Expanded Medicaid/CHIP Continuous Eligibility for Children, Step Therapy Reforms, andOut-of-Pocket Prescription Cost Protections Among 2024...
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Rare Is Everywhere: Be a Champion to the Rare Disease Community This Feb. 28
Think of 10 people you work with, 10 people you went to school with, or...
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NORD CEO Statement: Navigating Proposed Policy Changes and Their Impact on Rare Disease Advocacy
There are several proposed policy changes occurring across government entities, many of which have the...
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National Organization for Rare Disorders (NORD) Issues New Report on Lifesaving Newborn Screening Programs
NORD offers comprehensive review on statewide practices related to screening sample retention, provides policy recommendations February...
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Hack Rare: Engaging the Next Generation of Rare Disease Innovators
By Aditya Tummala, Sydney Wiredu, Derek Liu, and Pranav Ramesh Harvard College, Class of 2026...
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Statement by National Organization for Rare Disorders CEO, Pamela Gavin, on Congress’s Exclusion of Critical Rare Disease Bills in the Continuing Resolution
For the last several years, the National Organization for Rare Disorders (NORD) has had the...
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