News
National Organization for Rare Disorders (NORD) Announces 2025 Industry Innovation and Rare Impact Award Honorees
Annual Awards Celebrate Outstanding Contributions to Rare Disease Treatments, Advocacy, and Research QUINCY, Mass., July...
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After Two Centuries, the Parry Romberg Syndrome Community Needs Answers
In this NORD Guest Blog, the founder of the Parry Romberg Foundation discusses the 1825-2025...
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NORD Celebrates Rhode Island’s Historic Creation of Rare Disease Advisory Council
New council ensures thousands of Rhode Islanders living with rare diseases have a voice in...
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Accelerating Access to Information for the Rare Disease Community
If you’re living with a rare disease — or caring for someone who is —...
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Answer the Call to Help Build a Healthier Future
We’re all human, but we’re not all the same. Often, our differences — like age,...
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Find Your Herd Through Running for Rare This Global Running Day
Living with a rare disease means that Amanda is one of 30 million-plus “zebras” in...
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In Memory of Kate O’Bara: Raising Awareness for Vascular EDS
By Laura O’Bara for Ehlers-Danlos Syndrome Awareness Month When you asked me to tell you...
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FDA CBER Director Dr. Vinay Prasad to Keynote NORD’s Inaugural Rare Disease Scientific Symposium, Convening Top Researchers, Industry Leaders, and Federal Regulators
WASHINGTON, May 23, 2025 --The National Organization for Rare Disorders (NORD®) will convene leading voices...
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