News
Community Recap: Living Rare, Living Stronger in Georgia
July 21, 2025
For years, the National Organization for Rare Disorders (NORD®) Living Rare, Living Stronger® event has...
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National Organization for Rare Disorders (NORD) Announces 2025 Industry Innovation and Rare Impact Award Honorees
July 16, 2025
Annual Awards Celebrate Outstanding Contributions to Rare Disease Treatments, Advocacy, and Research QUINCY, Mass., July...
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After Two Centuries, the Parry Romberg Syndrome Community Needs Answers
July 2, 2025
In this NORD Guest Blog, the founder of the Parry Romberg Foundation discusses the 1825-2025...
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NORD Celebrates Rhode Island’s Historic Creation of Rare Disease Advisory Council
June 30, 2025
New council ensures thousands of Rhode Islanders living with rare diseases have a voice in...
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Accelerating Access to Information for the Rare Disease Community
June 30, 2025
If you’re living with a rare disease — or caring for someone who is —...
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Answer the Call to Help Build a Healthier Future
June 17, 2025
We’re all human, but we’re not all the same. Often, our differences — like age,...
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Find Your Herd Through Running for Rare This Global Running Day
June 4, 2025
Living with a rare disease means that Amanda is one of 30 million-plus “zebras” in...
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In Memory of Kate O’Bara: Raising Awareness for Vascular EDS
May 27, 2025
By Laura O’Bara for Ehlers-Danlos Syndrome Awareness Month When you asked me to tell you...
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