News
From Patient 3737 to Advocate: The Life-Changing Power of Clinical Trials
By Melinda Bachini of the Cholangiocarcinoma Foundation In April 2012, I walked into the National...
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NORD CEO Statement on Rare Cancer Day
Today, on Rare Cancer Day, I am proud to recognize the 30 organizations that make...
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Rare Faces of Medicaid: What’s at Stake for the Rare Community?
Congress is currently considering potentially sweeping funding cuts to Medicaid, a program that provides life-saving...
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#UndiagnosedLife: An Ode to My Wingman on My Diagnostic Odyssey
By Christine McGarvey, NORD Rare Action Network Ambassador for Pennsylvania I have been on a...
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Undiagnosed: Medical Students Work to Change Rare Disease Curriculum
In honor of Undiagnosed Day on April 29, the National Organization for Rare Disorders (NORD)...
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Statement by National Organization for Rare Disorders CEO, Pamela Gavin, on Congress’s Exclusion of Critical Rare Disease Bills in the Continuing Resolution
For the last several years, the National Organization for Rare Disorders (NORD) has had the...
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NORD CEO Statement: Navigating Proposed Policy Changes and Their Impact on Rare Disease Advocacy
There are several proposed policy changes occurring across government entities, many of which have the...
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NORD’s Latest Annual State Report Card Provides Crucial Benchmark as State Legislative Sessions Resume
Expanded Medicaid/CHIP Continuous Eligibility for Children, Step Therapy Reforms, andOut-of-Pocket Prescription Cost Protections Among 2024...
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