News
Recognizing National Nurse Practitioner Week 2025 – Roshani’s Story
By Roshani Kandel, DNP, ARNP, FNP-C, MPH About National Nurse Practitioner Week (November 9 to...
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Living Rare, Living Stronger: A Day of Connection, Courage, and Community in Milwaukee
For one powerful day in Milwaukee, more than 110 people impacted by rare diseases —...
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Racing for Answers: Annie’s Journey to Raise Awareness for Acromegaly
Meet Annie – she’s passionate about the environment and is an accomplished marathon runner who...
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Senator Amy Klobuchar Joins Rare Disease Community at National Gathering
Oct. 21, 2025 — U.S. Senator Amy Klobuchar joined the National Organization for Rare Disorders...
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NORD Breakthrough Summit Features Bold New Ideas for the Future of Rare Disease Care, Policy and Research
Lightning round poster presentations highlight cutting-edge insights on issues ranging from Medicaid coverage disparities to...
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Giving in a Changing Landscape: Why 2025 Matters for Rare Disease Families
In July 2025, Congress enacted one of the most significant federal tax reforms in recent...
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In Honor of Eddie — A Story of Courage, Love, and an Unbreakable Bond
For MPS Awareness Day, May 15 By Debra Bell, mother of Eddie James Bell Jr....
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Montana Establishes Rare Disease Advisory Council to Support Residents Living with Rare Conditions
NORD’s advocacy helps Montana become 32nd state to create a dedicated council HELENA, MONT., May 14,...
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