News
Honoring Nurses on International Nurses Day: The Bridge Between Rare Disease and Hope
By Alicia Truelove, MSN, RN, CV-BC, NPD-BC International Nurses Day, May 12, is a time...
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After Two Centuries, the Parry Romberg Syndrome Community Needs Answers
In this NORD Guest Blog, the founder of the Parry Romberg Foundation discusses the 1825-2025...
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National Organization for Rare Disorders (NORD) Announces 2025 Industry Innovation and Rare Impact Award Honorees
Annual Awards Celebrate Outstanding Contributions to Rare Disease Treatments, Advocacy, and Research QUINCY, Mass., July...
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Raising Awareness of GPP: Jimmy’s Story
In honor of Generalized Pustular Psoriasis (GPP) Awareness Day, coming up on Aug. 13, this...
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Advait Wattal’s Journey to Make a Difference
Advait Wattal, a student advocate and NORD State Ambassador, shares how his commitment to public...
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NORD’s 2025 Rare Diseases & Orphan Products Breakthrough Summit to Spotlight CEOs, Investors, and Regulatory Leaders Driving Innovation
WASHINGTON, D.C., Aug. 21, 2025 — The future of rare disease care and innovation will...
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NORD Unveils New, Free Data Literacy Course
"From Records to Research” empowers patients, caregivers to take control of their health The National...
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NORD Scientific Symposium Full Session Recordings Available Now
The NORD Rare Disease Scientific Symposium brought together a dynamic community of rare disease clinicians, researchers,...
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