News
Recognizing National Nurse Practitioner Week 2025 – Roshani’s Story
By Roshani Kandel, DNP, ARNP, FNP-C, MPH About National Nurse Practitioner Week (November 9 to...
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Living Rare, Living Stronger: A Day of Connection, Courage, and Community in Milwaukee
For one powerful day in Milwaukee, more than 110 people impacted by rare diseases —...
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Racing for Answers: Annie’s Journey to Raise Awareness for Acromegaly
Meet Annie – she’s passionate about the environment and is an accomplished marathon runner who...
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Senator Amy Klobuchar Joins Rare Disease Community at National Gathering
Oct. 21, 2025 — U.S. Senator Amy Klobuchar joined the National Organization for Rare Disorders...
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NORD Breakthrough Summit Features Bold New Ideas for the Future of Rare Disease Care, Policy and Research
Lightning round poster presentations highlight cutting-edge insights on issues ranging from Medicaid coverage disparities to...
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Giving in a Changing Landscape: Why 2025 Matters for Rare Disease Families
In July 2025, Congress enacted one of the most significant federal tax reforms in recent...
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NORD Celebrates Rhode Island’s Historic Creation of Rare Disease Advisory Council
New council ensures thousands of Rhode Islanders living with rare diseases have a voice in...
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Community Recap: Living Rare, Living Stronger in Georgia
For years, the National Organization for Rare Disorders (NORD®) Living Rare, Living Stronger® event has...
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