Webinar: Recognizing Rare Cancer Day Through Action
Rare Cancer Day is an annual celebration devoted to raising awareness about rare cancers and the challenges people living with them face. This year, Rare Cancer Day is being recognized […]
12 events found.
Events
Michigan Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Michigan Rare Disease Advisory Council meets quarterly and meetings are open to the public. Please email [email protected] for more information. You can find the upcoming meeting […]
Rare Eye Diseases: Awareness, Advocacy & Action
Join the Branford Lions Club for Rare Eye Diseases: Awareness, Advocacy & Action, an educational program focused on rare diseases of the eye and their impact on individuals and families. […]
Becoming Your Own Best Advocate: Practical Skills for Navigating the Rare and Undiagnosed Journey
Navigating a rare or undiagnosed condition can feel overwhelming, from preparing for medical appointments and communicating with providers to finding reliable information, resources, and support. Join us for a practical conversation designed to help patients and families feel more confident, informed, and prepared throughout their journey. Hear from Christine McGarvey, an undiagnosed patient and NORD’s […]
Georgia Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Georgia RDAC meets virtually, and you can find their meeting times linked below. Meetings
Webinar: Make an Impact with Your State’s Rare Disease Advisory Council
Rare Disease Advisory Councils (RDACs) give people impacted by rare diseases a meaningful voice in state government, and an opportunity to help shape policies and programs impacting the rare disease community. During this webinar, we’ll teach you how RDACs operate, and the different ways that advocates can advance and strengthen the work of a council. […]
Indiana Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Indiana RDAC hosts virtual meetings, and additional meeting information can be found below. Meetings
NORD Volunteer Information Session
In this session, NORD staff will provide an overview of NORD's volunteer programming. This is designed to give you a clear understanding of our mission and the various ways you […]
Join NORD’s Running for Rare Cheer Squad for the 2026 TCS NYC Marathon
Make a difference and join NORD’s Running for Rare Cheer Squad at the 2026 TCS New York City Marathon! Join NORD’s Running for Rare Cheer Squad and help bring energy, […]
Colorado Rare Disease Advisory Council (RDAC) Meeting
You can find the Colorado RDAC meeting times linked below. Meetings
Maryland Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Maryland Rare Disease Advisory Council meets monthly on the second Tuesday of the month from 4-5PM. You can find additional meeting time information linked below. Meetings
Illinois Rare Disease Commission Meeting
Commission Meetings The Illinois Rare Disease Commission meets monthly, and you can find additional meeting information below. Meetings