Becoming Your Own Best Advocate: Practical Skills for Navigating the Rare and Undiagnosed Journey

Navigating a rare or undiagnosed condition can feel overwhelming, from preparing for medical appointments and communicating with providers to finding reliable information, resources, and support. Join us for a practical conversation designed to help patients and families feel more confident, informed, and prepared throughout their journey.

Hear from Christine McGarvey, an undiagnosed patient and NORD’s Rare Action Network Pennsylvania State Ambassador, and Sarah Marshall, Community Program Manager and Patient Navigator at the Undiagnosed Diseases Network Foundation. Drawing on both lived and professional experience, they will share practical strategies for self-advocacy, navigating the healthcare system, communicating with providers, and finding resources and support.