News
Rare Faces of Medicaid: What’s at Stake for the Rare Community?
Congress is currently considering potentially sweeping funding cuts to Medicaid, a program that provides life-saving...
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Congress: Reauthorize the Rare Pediatric Disease Priority Review Voucher Program
First published July 23, 2024. Updated November 10, 2025 with new content and revisions. The...
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Hack Rare: Engaging the Next Generation of Rare Disease Innovators
By Aditya Tummala, Sydney Wiredu, Derek Liu, and Pranav Ramesh Harvard College, Class of 2026...
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National Organization for Rare Disorders (NORD) Issues New Report on Lifesaving Newborn Screening Programs
NORD offers comprehensive review on statewide practices related to screening sample retention, provides policy recommendations February...
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Rare Is Everywhere: Be a Champion to the Rare Disease Community This Feb. 28
Think of 10 people you work with, 10 people you went to school with, or...
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NORD, Bionews Partner to Bring Powerful Educational Content to Rare Disease Communities
New Mental Health Video Series Launches February 24 The National Organization for Rare Disorders (NORD®)...
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Highlights from Rare Disease Day 2025
From parachuting zebras to "Wicked" stars and breaking news from the NORD® Rare Disease Centers...
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Guest Blog: The Power of Patient Advocacy in Drug Development
The FDA approval of the first treatment for Friedreich’s Ataxia (FA) on Rare Disease Day...
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