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  • Webinar: Make an Impact with Your State’s Rare Disease Advisory Council

    Rare Disease Advisory Councils (RDACs) give people impacted by rare diseases a meaningful voice in state government, and an opportunity to help shape policies and programs impacting the rare disease community. During this webinar, we’ll teach you how RDACs operate, and the different ways that advocates can advance and strengthen the work of a council. […]

  • Maryland Rare Disease Advisory Council (RDAC) Meeting

    Advisory Council Meetings The Maryland Rare Disease Advisory Council meets monthly on the second Tuesday of the month from 4-5PM. You can find additional meeting time information linked below. Meetings

    Illinois Rare Disease Commission Meeting

    Commission Meetings The Illinois Rare Disease Commission meets monthly, and you can find additional meeting information below. Meetings

    Virginia Rare Disease Council Meeting

    Advisory Council Meetings The Virginia Rare Disease Council meets quarterly. You can search for Virginia Rare Disease Council meetings on the Virginia Regulatory Town Hall website. To do so, simply […]