In this session, NORD staff will provide an overview of NORD's volunteer programming. This is designed to give you a clear understanding of our mission and the various ways you can make an impact. We will conclude with an open-floor discussion, providing a space for you to ask questions and determine the next steps for […]
Make a difference and join NORD’s Running for Rare Cheer Squad at the 2026 TCS New York City Marathon! Join NORD’s Running for Rare Cheer Squad and help bring energy, encouragement, and support to runners along the course. Your presence will help motivate NORD’s team and show the rare disease community that they are surrounded […]
You can find the Colorado RDAC meeting times linked below. Meetings
Advisory Council Meetings The Maryland Rare Disease Advisory Council meets monthly on the second Tuesday of the month from 4-5PM. You can find additional meeting time information linked below. Meetings
Commission Meetings The Illinois Rare Disease Commission meets monthly, and you can find additional meeting information below. Meetings
Advisory Council Meetings You can find the South Carolina RDAC meeting times linked below. Contact [email protected] for more info. Meetings
Advisory Council Meetings The Virginia Rare Disease Council meets quarterly. You can search for Virginia Rare Disease Council meetings on the Virginia Regulatory Town Hall website. To do so, simply click "Regulatory Board" and select "State Board of Health". Then click "Scheduled For" and select "All Past and Future". Finally, under "Meeting Title Partial Match" […]
Advisory Council Meetings The Massachusetts RDAC meets virtually, and you can find additional meeting information linked below. Meetings
The Tennessee RDAC meetings are scheduled on the fourth Wednesday of every other month from 8:00 am to 9:30 am CST. If you are interested in joining the meeting, please […]
The Nevada RDAC meets on the First Friday of the month on even numbered months at 9:30 AM PST. You can find the Nevada RDAC meeting times linked below. Please […]
Advisory Council Meetings The Delaware Rare Disease Advisory Council meets online, and those meetings are open to the public. If you’d like to attend, please reference the Public Meeting Calendar […]
Advisory Council Meetings The Missouri RDAC meets virtually, and you can find additional meeting information below. Meetings
