Students for Rare New Chapter Info Session – July
Are you a collegiate student interested in starting a NORD Students for Rare chapter on campus? Come and learn more about the program and next steps during our New Chapter […]
12 events found.
Events
Hoops for Hunter Syndrome
Shoot Hoops. Raise Hope. Change Lives. Join Project Alive on July 19 for Hoops for Hunter Syndrome, a fun-filled basketball event benefiting Project Alive and the Hunter syndrome community! Date: […]
Webinar: State Legislative Session Recap
As state legislative sessions wind down, join NORD’s Rare Action Network (RAN) for an end of session policy & advocacy wrap up. During this webinar, we’ll discuss bills we tracked […]
Webinar: Overcoming Insurance Barriers
If you are impacted by a rare disease, you are likely spending countless hours navigating health insurance. In this session, we will discuss common insurance barriers faced by patients and […]
Students for Rare New Chapter Info Session – August
Are you a collegiate student interested in starting a NORD Students for Rare chapter on campus? Come and learn more about the program and next steps during our New Chapter […]
Webinar: Understanding Medical Nutrition and Insurance Coverage Challenges
For many rare disease patients, medical nutrition products are life-sustaining medicine, yet insurance coverage for medical nutrition is inconsistent and varies widely based on a patient's diagnosis, insurance plan type, […]
Webinar: Innovative Approaches to Improving Your Rare Disease Care
In an era of scientific and technological advances, rare disease care is changing every day. Join us for a robust panel discussion diving into different approaches to navigate and improve […]
Webinar: Recognizing Rare Cancer Day Through Action
Rare Cancer Day is an annual celebration devoted to raising awareness about rare cancers and the challenges people living with them face. This year, Rare Cancer Day is being recognized […]
Michigan Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Michigan Rare Disease Advisory Council meets quarterly and meetings are open to the public. Please email [email protected] for more information. You can find the upcoming meeting times linked below. Meetings
Rare Eye Diseases: Awareness, Advocacy & Action
Join the Branford Lions Club for Rare Eye Diseases: Awareness, Advocacy & Action, an educational program focused on rare diseases of the eye and their impact on individuals and families. Presented in collaboration with Quinnipiac University’s Netter School of Medicine and Center for Interprofessional Healthcare Education and The Denise D’Ascenzo Foundation, the event will explore […]
Becoming Your Own Best Advocate: Practical Skills for Navigating the Rare and Undiagnosed Journey
Navigating a rare or undiagnosed condition can feel overwhelming, from preparing for medical appointments and communicating with providers to finding reliable information, resources, and support. Join us for a practical […]
Georgia Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Georgia RDAC meets virtually, and you can find their meeting times linked below. Meetings