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  • Missouri Advisory Council on Rare Diseases and Personalized Medicine (RDAC) Meeting

    Advisory Council Meetings The Missouri RDAC meets virtually, and you can find additional meeting information below. Meetings Register for Public Comment: Any interested party shall be granted the opportunity for clinically relevant public comment for up to three (3) minutes per medication under review by the RDAC. The responsibility of scheduling the presentation shall rest […]

  • Delaware Rare Disease Advisory Council (RDAC) Meeting

    Advisory Council Meetings The Delaware Rare Disease Advisory Council meets online, and those meetings are open to the public. If you’d like to attend, please reference the Public Meeting Calendar for a schedule of upcoming meetings. Public Meeting Calendar  

    Virginia Rare Disease Council Meeting

    Advisory Council Meetings The Virginia Rare Disease Council meets quarterly. You can search for Virginia Rare Disease Council meetings on the Virginia Regulatory Town Hall website. To do so, simply select "State Board of Health" as the "Regulatory Board" and "All Past and Future" under "Scheduled For". Finally, enter "Rare Disease" in the "Meeting Title […]

  • New York RDAC Coalition Meeting

    During this session, NORD staff will present: Legislative Updates: A deep dive into S1287-B/A1296-B, legislation that would codify a Rare Disease Advisory Council (RDAC) into law in New York. Advocacy […]

    NORD Volunteer Meeting

    NORD Volunteer Meeting

    Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]