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  • Living Rare, Living Stronger Colorado

    The National Organization for Rare Disorders (NORD®) invites you to join us in Denver, Colorado for a day of education and connection. Our Living Rare Forum is designed to help […]

    Virginia Rare Disease Council Meeting

    Advisory Council Meetings The Virginia Rare Disease Council meets quarterly. You can search for Virginia Rare Disease Council meetings on the Virginia Regulatory Town Hall website. To do so, simply […]

    NORD Volunteer Meeting

    NORD Volunteer Meeting

    Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]

  • Rare Disease Symposium

    Join the A.J. Anderson Foundation and the Florida Institute for Pediatric Rare Diseases for two days of connection, research, and hope in support of children and families affected by rare […]

    Colorado Rare Disease Advisory Council (RDAC) Meeting

    Advisory Council Meetings You can find the Colorado RDAC meeting times linked below. Meetings The Colorado Rare Disease Advisory Council welcomes comments from the general public during each meeting. Any […]

    NORD Volunteer Meeting

    NORD Volunteer Meeting

    Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]