News
Undiagnosed: A Mother and Son’s Journey
“Having someone say, ‘This is your diagnosis. You are not crazy. It’s not in your...
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Navigating Adversity Through Writing, an Interview with Chris Anselmo
Chris Anselmo is a writer, coach, and advocate who is passionate about resilience and personal...
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Guest Blog: The Power of Patient Advocacy in Drug Development
The FDA approval of the first treatment for Friedreich’s Ataxia (FA) on Rare Disease Day...
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NORD CEO Statement on the Termination of the Advisory Committee on Heritable Disorders in Newborns and Children
The National Organization for Rare Disorders (NORD®) is a nonprofit, nonpartisan organization representing the more...
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A Deeper Look at the New NORD Rare Disease Scientific Symposium
Fostering collaboration to drive progress in rare disease research By Tracey Sikora, Vice President of...
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National Organization for Rare Disorders (NORD) Launches NORD Claim Your Care
Danbury, CT, March 21, 2025 – The National Organization for Rare Disorders (NORD®) launched NORD®...
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Highlights from Rare Disease Day 2025
From parachuting zebras to "Wicked" stars and breaking news from the NORD® Rare Disease Centers...
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NORD, Paramount Pictures Join Forces to Raise Awareness of Rare Disease
Paramount to match funds donated to NORD in support of new film Novocaine QUINCY, Mass., Feb. 27,...
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