Join the Rare Action Network
NORD’s Rare Action Network® (RAN) is a grassroots community of advocates and volunteers focused on raising awareness and taking action to improve the health and well-being of the 30+ million Americans living with rare diseases. The mission of RAN is to connect and empower individuals and groups to make positive impacts for the rare disease community through advocacy, community outreach, and awareness.
Why Should I Become a RAN Member?
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Becoming a Rare Action Network® member will enable you to drive progress for the entire rare disease community by:
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Making your voice heard among legislators by participating in state and federal action alerts.
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Participating in educational and community-building events to learn about key issues,strengthen your advocacy skills, and develop relationships with decision-makers and leaders.
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Connecting with other patients, caregivers, and stakeholders within your state to identify leading issues and work towards solutions
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Sharing your story to raise awareness about the challenges experienced by the 1 in 10 Americans living with a rare disease