Join Rare Action

Members of the RareAction Network^® are part of 30+ million person community working towards improving the lives of patients with rare diseases.  This expansive network enables you to:

• Connect with other patients, caregivers, and stakeholders, within your state and region through calls, webinars, and in-person meetings
• Participate in regional and local events to connect, learn and address the nation’s leading issues
• Develop relationships with key decision-makers and opinion leaders
• Share your story to help other patients by raising awareness
• Receive news and information on what the network is taking action on and participate in the network’s Calls to Action