NORD Volunteer Meeting
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. Register Here
12 events found.
Events
Rare Disease Community Meet Up
Stop by Greenwood Brewing on Thursday, May 7 between 6pm to 8pm for a rare disease community meet up! This is a wonderful chance to connect with one another over craft beer and finger foods in a relaxed setting. Greenwood Brewing will feature a special Zebra Hop brew for the meet up. Zebra Hop was created by Jonathan Kowalske of Component […]
Living Rare, Living Stronger Arizona
The National Organization for Rare Disorders (NORD®) invites you to join us in Phoenix, Arizona for a day of education and connection. Our Living Rare Forum is designed to help you navigate your life with a rare disease or as a rare caregiver. Each forum features expert speakers, dynamic educational sessions, and meaningful community-building opportunities. […]
Maryland Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Maryland Rare Disease Advisory Council meets monthly on the second Tuesday of the month from 4-5PM. You can find additional meeting time information linked below. Meetings
Illinois Rare Disease Commission Meeting
Commission Meetings The Illinois Rare Disease Commission meets monthly, and you can find additional meeting information below. Meetings
Living Rare, Living Stronger Colorado
The National Organization for Rare Disorders (NORD®) invites you to join us in Denver, Colorado for a day of education and connection. Our Living Rare Forum is designed to help you navigate your life with a rare disease or as a rare caregiver. Each forum features expert speakers, dynamic educational sessions, and meaningful community-building opportunities. […]
New Hampshire Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings Meetings are open to the public and are usually held at 29 Hazen Drive, Concord, NH, but the location is subject to change. Meetings occur on the 3rd Monday in January, March, May, July, September, and November, from 12:00-1:00pm. For information about attending a meeting, including confirmation the location, please contract Bureau […]
Virginia Rare Disease Council Meeting
Advisory Council Meetings The Virginia Rare Disease Council meets quarterly. You can search for Virginia Rare Disease Council meetings on the Virginia Regulatory Town Hall website. To do so, simply […]
Georgia Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Georgia RDAC meets virtually, and you can find their meeting times linked below. Meetings
Massachusetts Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Massachusetts RDAC meets virtually, and you can find additional meeting information linked below. Meetings
Indiana Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Indiana RDAC hosts virtual meetings, and additional meeting information can be found below. Meetings
NORD Volunteer Meeting
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. Register Here