Florida Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Florida RDAC meets virtually, and you can find the meeting times linked below. Meetings
8 events found.
Events
New York RDAC Coalition Meeting
During this session, NORD staff will present: Legislative Updates: A deep dive into S1287-B/A1296-B, legislation that would codify a Rare Disease Advisory Council (RDAC) into law in New York. Advocacy Resources: Key details regarding our latest Action Alerts and upcoming webinars. Strategic Next Steps: Clear, actionable items for grassroots advocates to move the needle. Register […]
NORD Volunteer Meeting
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. Register Here
Vermont Advocacy Day
Join NORD’s Vermont Rare Action Network (RAN) for an advocacy event in Montpelier at the State House on Wednesday, April 8, 2026. This is your chance to meet face-to-face with your […]
NORD Volunteer Meeting
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]
Rare Disease Community Meet Up
Stop by Greenwood Brewing on Thursday, May 7 between 6pm to 8pm for a rare disease community meet up! This is a wonderful chance to connect with one another over craft beer and […]
Living Rare, Living Stronger Arizona
The National Organization for Rare Disorders (NORD®) invites you to join us in Phoenix, Arizona for a day of education and connection. Our Living Rare Forum is designed to help […]
Maryland Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Maryland Rare Disease Advisory Council meets monthly on the second Tuesday of the month from 4-5PM. You can find additional meeting time information linked below. Meetings