During this session, NORD staff will present: Legislative Updates: A deep dive into S1287-B/A1296-B, legislation that would codify a Rare Disease Advisory Council (RDAC) into law in New York. Advocacy Resources: Key details regarding our latest Action Alerts and upcoming webinars. Strategic Next Steps: Clear, actionable items for grassroots advocates to move the needle. Register […]
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. Register Here
Join NORD’s Vermont Rare Action Network (RAN) for an advocacy event in Montpelier at the State House on Wednesday, April 8, 2026. This is your chance to meet face-to-face with your legislators and advocate for H.46 – the bill to create a Rare Disease Advisory Council (RDAC) in Vermont. During this event, we will have a […]
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. Register Here
The National Organization for Rare Disorders (NORD®) invites you to join us in Phoenix, Arizona for a day of education and connection. Our Living Rare Forum is designed to help you navigate your life with a rare disease or as a rare caregiver. Each forum features expert speakers, dynamic educational sessions, and meaningful community-building opportunities. […]
The National Organization for Rare Disorders (NORD®) invites you to join us in Denver, Colorado for a day of education and connection. Our Living Rare Forum is designed to help you navigate your life with a rare disease or as a rare caregiver. Each forum features expert speakers, dynamic educational sessions, and meaningful community-building opportunities. […]
Advisory Council Meetings Meetings are open to the public and are usually held at 29 Hazen Drive, Concord, NH, but the location is subject to change. Meetings occur on the 3rd Monday in January, March, May, July, September, and November, from 12:00-1:00pm. For information about attending a meeting, including confirmation the location, please contract Bureau […]
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. Register Here
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. Register Here
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. Register Here
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. Register Here
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. Register Here
