Skip to main content.
  • New Hampshire Rare Disease Advisory Council (RDAC) Meeting

    Advisory Council Meetings Meetings are open to the public and are usually held at 29 Hazen Drive, Concord, NH, but the location is subject to change. Meetings occur on the 3rd Monday in January, March, May, July, September, and November, from 12:00-1:00pm. For information about attending a meeting, including confirmation the location, please contract Bureau […]

    Virginia Rare Disease Council Meeting

    Advisory Council Meetings The Virginia Rare Disease Council meets quarterly. You can search for Virginia Rare Disease Council meetings on the Virginia Regulatory Town Hall website. To do so, simply select "State Board of Health" as the "Regulatory Board" and "All Past and Future" under "Scheduled For". Finally, enter "Rare Disease" in the "Meeting Title […]

    NORD Volunteer Meeting

    NORD Volunteer Meeting

    Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. Register Here

  • Rare Disease Symposium

    Join the A.J. Anderson Foundation and the Florida Institute for Pediatric Rare Diseases for two days of connection, research, and hope in support of children and families affected by rare diseases.

    Colorado Rare Disease Advisory Council (RDAC) Meeting

    Advisory Council Meetings You can find the Colorado RDAC meeting times linked below. Meetings The Colorado Rare Disease Advisory Council welcomes comments from the general public during each meeting. Any member of the public who would like to offer a comment at a meeting may do so during the Public Comment portion of the agenda. […]

    NORD Volunteer Meeting

    NORD Volunteer Meeting

    Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. Register Here

  • Missouri Advisory Council on Rare Diseases and Personalized Medicine Meeting

    Advisory Council Meetings The Missouri RDAC meets virtually, and you can find additional meeting information below. Meetings Register for Public Comment: Any interested party shall be granted the opportunity for clinically relevant public comment for up to three (3) minutes per medication under review by the RDAC. The responsibility of scheduling the presentation shall rest […]