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  • Webinar: Overcoming Insurance Barriers

    If you are impacted by a rare disease, you are likely spending countless hours navigating health insurance. In this session, we will discuss common insurance barriers faced by patients and […]

    NORD Volunteer Meeting

    NORD Volunteer Meeting

    Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]

  • Virginia Rare Disease Council Meeting

    Advisory Council Meetings The Virginia Rare Disease Council meets quarterly. You can search for Virginia Rare Disease Council meetings on the Virginia Regulatory Town Hall website. To do so, simply […]

    Colorado Rare Disease Advisory Council (RDAC) Meeting

    Advisory Council Meetings You can find the Colorado RDAC meeting times linked below. Meetings The Colorado Rare Disease Advisory Council welcomes comments from the general public during each meeting. Any […]

  • Delaware Rare Disease Advisory Council (RDAC) Meeting

    Advisory Council Meetings The Delaware Rare Disease Advisory Council meets online, and those meetings are open to the public. If you’d like to attend, please reference the Public Meeting Calendar […]