National Organization for Rare Disorders

Our Vision

Across NORD®, we adhere to a shared vision that guides our efforts to help improve the health and well-being of people with rare diseases. We strive for:

• A national awareness and recognition of the challenges faced by people living with rare diseases and the associated costs to society.
• A nation where people with rare disease can secure access to care that extends and improves their lives.
• A social, political, and financial culture of innovation that supports both basic and translational research that is necessary to create tests and therapies for all rare disorders
• A regulatory environment that encourages development and timely approval of safe and effective treatments for patients with rare diseases.