Students for Rare New Chapter Info Session – July
Are you a collegiate student interested in starting a NORD Students for Rare chapter on campus? Come and learn more about the program and next steps during our New Chapter […]
12 events found.
Events
Illinois Rare Disease Commission Meeting
Commission Meetings The Illinois Rare Disease Commission meets monthly, and you can find additional meeting information below. Meetings
South Carolina Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings You can find the South Carolina RDAC meeting times linked below. Contact [email protected] for more info. Meetings
Maryland Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Maryland Rare Disease Advisory Council meets monthly on the second Tuesday of the month from 4-5PM. You can find additional meeting time information linked below. Meetings
Georgia Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Georgia RDAC meets virtually, and you can find their meeting times linked below. Meetings
Hoops for Hunter Syndrome
Shoot Hoops. Raise Hope. Change Lives. Join Project Alive on July 19 for Hoops for Hunter Syndrome, a fun-filled basketball event benefiting Project Alive and the Hunter syndrome community! Date: […]
Michigan Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Michigan Rare Disease Advisory Council meets quarterly and meetings are open to the public. Please email [email protected] for more information. You can find the upcoming meeting […]
Webinar: State Legislative Session Recap
As state legislative sessions wind down, join NORD’s Rare Action Network (RAN) for an end of session policy & advocacy wrap up. During this webinar, we’ll discuss bills we tracked […]
Massachusetts Rare Disease Advisory Council (RDAC) Meeting
Advisory Council Meetings The Massachusetts RDAC meets virtually, and you can find additional meeting information linked below. Meetings
Webinar: Overcoming Insurance Barriers
If you are impacted by a rare disease, you are likely spending countless hours navigating health insurance. In this session, we will discuss common insurance barriers faced by patients and caregivers living with a rare disease, and tips to overcome them. This panel incorporates several unique perspectives for every step in your journey that you […]
NORD Volunteer Information Session
In this session, NORD staff will provide an overview of NORD's volunteer programming. This is designed to give you a clear understanding of our mission and the various ways you can make an impact. We will conclude with an open-floor discussion, providing a space for you to ask questions and determine the next steps for […]
Virginia Rare Disease Council Meeting
Advisory Council Meetings The Virginia Rare Disease Council meets quarterly. You can search for Virginia Rare Disease Council meetings on the Virginia Regulatory Town Hall website. To do so, simply select "State Board of Health" as the "Regulatory Board" and "All Past and Future" under "Scheduled For". Finally, enter "Rare Disease" in the "Meeting Title […]