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  • New York RDAC Coalition Meeting

    During this session, NORD staff will present: Legislative Updates: A deep dive into S1287-B/A1296-B, legislation that would codify a Rare Disease Advisory Council (RDAC) into law in New York. Advocacy Resources: Key details regarding our latest Action Alerts and upcoming webinars. Strategic Next Steps: Clear, actionable items for grassroots advocates to move the needle. Register […]

    NORD Volunteer Meeting

    NORD Volunteer Meeting

    Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. Register Here

  • Vermont Advocacy Day

    Join NORD’s Vermont Rare Action Network (RAN) for an advocacy event in Montpelier at the State House on Wednesday, April 8, 2026. This is your chance to meet  face-to-face with your […]

    NORD Volunteer Meeting

    NORD Volunteer Meeting

    Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]

  • Living Rare, Living Stronger Arizona

    The National Organization for Rare Disorders (NORD®) invites you to join us in Phoenix, Arizona for a day of education and connection. Our Living Rare Forum is designed to help […]

    Living Rare, Living Stronger Colorado

    The National Organization for Rare Disorders (NORD®) invites you to join us in Denver, Colorado for a day of education and connection. Our Living Rare Forum is designed to help […]

    New Hampshire Rare Disease Advisory Council (RDAC) Meeting

    Advisory Council Meetings Meetings are open to the public and are usually held at 29 Hazen Drive, Concord, NH, but the location is subject to change. Meetings occur on the 3rd Monday in January, March, May, July, September, and November, from 12:00-1:00pm. For information about attending a meeting, including confirmation the location, please contract Bureau […]

    NORD Volunteer Meeting

    NORD Volunteer Meeting

    Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]

  • NORD Volunteer Meeting

    NORD Volunteer Meeting

    Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]

  • NORD Volunteer Meeting

    NORD Volunteer Meeting

    Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]

  • NORD Volunteer Meeting

    NORD Volunteer Meeting

    Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]