Advisory Council Meetings The Delaware Rare Disease Advisory Council meets online, and those meetings are open to the public. If you’d like to attend, please reference the Public Meeting Calendar […]
Advisory Council Meetings The Virginia Rare Disease Council meets quarterly. You can search for Virginia Rare Disease Council meetings on the Virginia Regulatory Town Hall website. To do so, simply […]
Advisory Council Meetings The Georgia RDAC meets virtually, and you can find their meeting times linked below. Meetings
During this session, NORD staff will present: Legislative Updates: A deep dive into S1287-B/A1296-B, legislation that would codify a Rare Disease Advisory Council (RDAC) into law in New York. Advocacy […]
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]
Join NORD’s Vermont Rare Action Network (RAN) for an advocacy event in Montpelier at the State House on Wednesday, April 8, 2026. This is your chance to meet face-to-face with your […]
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]
The National Organization for Rare Disorders (NORD®) invites you to join us in Phoenix, Arizona for a day of education and connection. Our Living Rare Forum is designed to help […]
The National Organization for Rare Disorders (NORD®) invites you to join us in Denver, Colorado for a day of education and connection. Our Living Rare Forum is designed to help […]
Advisory Council Meetings Meetings are open to the public and are usually held at 29 Hazen Drive, Concord, NH, but the location is subject to change. Meetings occur on the […]
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]
Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of […]
