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NORD Wisconsin Rare Action Network Rare Disease Day
Saturday, March 11, 2023
Evjue Commons space at Olbrich Botanical Gardens
3330 Atwood Ave, Madison, WI 53704
Event is from 1:00pm -3:00 pm
There is no cost to participants to attend this event

One of the greatest challenges individuals living with a rare disease, their families, and patient advocates have is finding and accessing information and resources to help them advocate for themselves and their loved ones, as well as to raise awareness of issues facing others in the community. To help alleviate these daily burdens and ensure individuals and advocates can navigate local and state-based resources, we will be hosting a State Resource Fair for the rare disease community to coincide with Rare Disease Day.

Danyelle Sun
Wisconsin Volunteer State Ambassador
[email protected]

Lani Knutson
Wisconsin Volunteer State Ambassador
[email protected]

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Wisconsin’s RareAction Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Wisconsin.

Wisconsin COVID-19 Resources & Information

State Resource Page

The Wisconsin Department of Health Services has created this helpful resource website in response to COVID-19.

Wisconsin needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance  or have additional questions on how to take action in Wisconsin, please contact your State Ambassador, Danyelle Sun.

State Information

Mark Afable, Commissioner

State of Wisconsin
Office of the Commissioner of Insurance
PO Box 7873
Madison, Wisconsin 53707


Emergency Preparedness Toolkit for Persons with Disabilities

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

Email for Assistance: [email protected]
1-800-236-8517 (within Wisconsin)
1-608-266-0103 (outside of Wisconsin)

State Health Insurance Consumer Assistance Program

Consumer Assistance Program Email: [email protected] or [email protected]

NORD Links


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