Wisconsin State Ambassador
Please join Wisconsin Rare Action Network for Rare Disease Day Advocacy Event on Tuesday, April 23, 2019 at 12:00pm -4:30pm, Wisconsin State Capitol, Assembly Parlor West, 2 E Main St, Madison, WI 53703 Greenfield, WI 53221. Patients, families, caregivers, medical professionals and industry representatives are invited to attend this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Wisconsin. REGISTER HERE
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Wisconsin’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Wisconsin.
Wisconsin needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance or have additional questions on how to take action in Wisconsin, please contact your State Ambassador, Danyelle Sun.
In this fourth edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.
Scoring for State Policies
A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.
B: State policy meets most, but not all desired standards
C: State policy on the given issue meets minimum standards
D: State has some policy in place, but it does not meet the standards of higher tiers
F: State has no policy provision for the relevant issue
Mark Afable, Commissioner
State of Wisconsin
Office of the Commissioner of Insurance
PO Box 7873
Madison, Wisconsin 53707