Wisconsin

What's Happening Now?

Please join NORD’s Wisconsin Rare Action Network (RAN) for our upcoming Virtual Rare Discussion Groups to exchange stories and experiences of living with or caring for someone with a rare disease, including those experiences related to the COVID-19 pandemic. Come ready to share your concerns, ask questions, and hear updates from NORD. These meetings are open to all–you do not have to be a RAN member.

Thursday, July 15, 2021 at 6:00pm CST
Click Here to Register for the July 15th Virtual Discussion Group

Thursday, September 16, 2021 at 6:00pm CST
Click Here to Register for the September 16th Virtual Discussion Group

Thursday, November 18, 2021 at 6:00pm CST
Click Here to Register for the November 18th Virtual Discussion Group

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Wisconsin’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Wisconsin.

Danyelle Sun
Wisconsin Volunteer State Ambassador
[email protected]

Kerri Engebrecht
Wisconsin Volunteer State Ambassador
[email protected]

Lani Knutson
Wisconsin Volunteer Community
Engagement Liaison
[email protected]

Follow Wisconsin RAN on Facebook

Check out the West Virginia Rare Disease Day Virtual Event Recording

Wisconsin Rare Action Network hosted a Rare Disease Day Virtual Event on February 25, 2021. We were joined by patients, families, caregivers and other rare disease community members at this important virtual event that educated Wisconsin legislators and the general public on the challenges faced by rare disease patients and their families.

CLICK HERE FOR THE RECORDING

Wisconsin COVID-19 Resources & Information

State Resource Page

The Wisconsin Department of Health Services has created this helpful resource website in response to COVID-19.

https://www.dhs.wisconsin.gov/covid-19/index.htm

Wisconsin needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance or have additional questions on how to take action in Wisconsin, please contact your State Ambassador, Danyelle Sun.

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