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Wisconsin

What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Wisconsin’s RareAction Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Wisconsin.

Danyelle Sun
Wisconsin Volunteer State Ambassador
[email protected]

Kerri Engebrecht
Wisconsin Volunteer State Ambassador
[email protected]

Lani Knutson
Wisconsin Volunteer Community
Engagement Liaison
[email protected]

Check out the Wisconsin Rare Disease Day Virtual Event Recording

Wisconsin RareAction Network hosted a Rare Disease Day Virtual Event on February 25, 2021. We were joined by patients, families, caregivers and other rare disease community members at this important virtual event that educated Wisconsin legislators and the general public on the challenges faced by rare disease patients and their families.

CLICK HERE FOR THE RECORDING

Wisconsin COVID-19 Resources & Information

State Resource Page

The Wisconsin Department of Health Services has created this helpful resource website in response to COVID-19.

https://www.dhs.wisconsin.gov/covid-19/index.htm

Wisconsin needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance  or have additional questions on how to take action in Wisconsin, please contact your State Ambassador, Danyelle Sun.

State Information

Mark Afable, Commissioner

State of Wisconsin
Office of the Commissioner of Insurance
PO Box 7873
Madison, Wisconsin 53707

608-266-3585

Emergency Preparedness Toolkit for Persons with Disabilities

https://cpd.wisconsin.gov/toolkit.htm

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

Email for Assistance: [email protected]
1-800-236-8517 (within Wisconsin)
1-608-266-0103 (outside of Wisconsin)

State Health Insurance Consumer Assistance Program

Consumer Assistance Program Email: [email protected] or [email protected]

NORD Links

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