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Wisconsin

Danyelle Sun

Wisconsin State Ambassador

[email protected]

Wisconsin Rare Disease Day Virtual Event

Thursday, February 25, 2021
12:00pm – 1:30pm CST

Wisconsin Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Wisconsin legislators and the general public on the challenges faced by rare disease patients and their families. We will explore how the formation of a Rare Disease Advisory Council (RDAC) could address the needs of those living with a rare disease in Wisconsin by providing stakeholders an opportunity to make formal recommendations to state leaders about the most important issues they face, including the need for increased research and awareness, knowledgeable health care providers, and timely access to affordable diagnostics, treatments and cures.

REGISTER HERE

Wisconsin COVID-19 Resources & Information

State Resource Page

The Wisconsin Department of Health Services has created this helpful resource website in response to COVID-19.

https://www.dhs.wisconsin.gov/covid-19/index.htm

What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Wisconsin’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Wisconsin.

Wisconsin needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance  or have additional questions on how to take action in Wisconsin, please contact your State Ambassador, Danyelle Sun.

State Information

Mark Afable, Commissioner

State of Wisconsin
Office of the Commissioner of Insurance
PO Box 7873
Madison, Wisconsin 53707

608-266-3585

Emergency Preparedness Toolkit for Persons with Disabilities

https://cpd.wisconsin.gov/toolkit.htm

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

Email for Assistance: [email protected]
1-800-236-8517 (within Wisconsin)
1-608-266-0103 (outside of Wisconsin)

State Health Insurance Consumer Assistance Program

Consumer Assistance Program Email: [email protected] or [email protected]

NORD Links

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