Wisconsin

Danyelle Sun

Wisconsin State Ambassador

[email protected]

Please join the Wisconsin Rare Action Network for our bi-monthly virtual rare discussion groups. Join rare advocates to discuss challenges rare patients are facing in Wisconsin and connect with others. Below are the dates and registration links for the meetings.

Tuesday, July 21, 2020 at 6:00pm CST Register for the 7/21 meeting here
Saturday, September 19, 2020 at 1:00pm CST Register for the 9/19 meeting here
Tuesday, November 17, 2020 at 6:00pm CST Register for the 11/17 meeting here

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Wisconsin’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Wisconsin.

Wisconsin needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance  or have additional questions on how to take action in Wisconsin, please contact your State Ambassador, Danyelle Sun.

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.