Wisconsin

Danyelle Sun

Wisconsin State Ambassador

[email protected]

Please join Wisconsin Rare Action Network for Rare Disease Day on Saturday, February 29, 2020 from 12:00pm-3:00pm at the Gardner Room at the Wehr Nature Center, 9701 W. College Avenue, Franklin, WI 53132. Join patients, families, caregivers, medical professionals and industry representatives at this important event to learn about the challenges rare disease patients face, resources available to address these challenges, and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Wisconsin.

CLICK HERE TO REGISTER

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Wisconsin’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Wisconsin.

Wisconsin needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance  or have additional questions on how to take action in Wisconsin, please contact your State Ambassador, Danyelle Sun.

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.