Wisconsin

Danyelle Sun

Wisconsin State Ambassador

Wisconsin COVID-19 Resources & Information

Rare Action Network (RAN) COVID-19 Virtual Discussion Group

Please join us for a COVID-19 Virtual Discussion Group on May 21, 2020 at 6:30pm CT. This will be an opportunity for the Wisconsin rare disease community to express concerns, ask questions, and hear updates from NORD. Alone we are rare, together we are strong. Register here.

State Resource Page

The Wisconsin Department of Health Services has created this helpful resource website in response to COVID-19.

https://www.dhs.wisconsin.gov/covid-19/index.htm

What's Happening Now?

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Wisconsin’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in Wisconsin.

Wisconsin needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance or have additional questions on how to take action in Wisconsin, please contact your State Ambassador, Danyelle Sun.

Learn Key Issues

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State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.