Texas State Ambassador
What's Happening Now?
ATTENTION: October 2 Virtual Discussion Group has been Cancelled
Please join the Texas Rare Action Network for our monthly virtual rare discussion groups (beginning in August 2020). Join rare advocates to discuss challenges rare patients are facing in Texas and connect with others. Register for the 2020 meeting(s) here.
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Texas’ Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Texas.
Baylor Undiagnosed Disease Network
The Undiagnosed Diseases Network (UDN) is a research study funded by the National Institutes of Health Common Fund, made up of medical and research centers across the United States working to improve diagnosis and care of patients with undiagnosed diseases. Through this study, we hope to both help individual patients and families and contribute to the understanding of how the human body works.
Due to the complex nature of the body and the diseases being investigated, we cannot accept all applicants into the study. However, we do fully review all applications we receive. For more information about the UDN and the application process, please visit: https://undiagnosed.hms.harvard.edu/sites/baylor-college-of-medicine/
In order to make meaningful change in the lives of rare disease patients and their families in the state of Texas, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.
Kent Sullivan, Commissioner
Texas Department of Insurance
PO Box 149104
Austin, Texas 78714
Email for Assistance: [email protected]
or 463-6515 in Austin
Consumer Assistance Program Email: [email protected]