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South Carolina

Kerri Nelson
South Carolina State Ambassador
[email protected]

South Carolina Rare Disease Day Virtual Event

Friday, February 26, 2021
9:00am – 10:30am EST

South Carolina Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate South Carolina legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where South Carolina is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to facilitate the effort to get an RDAC signed into law.


South Carolina COVID-19 Resources & Information

COVID-19 State Resource Page

South Carolina Department of Health and Economic Control has created this helpful resource website in response to COVID-19.

What's Happening Now?

Please join the South Carolina Rare Action Network for our monthly virtual rare discussion groups. They are held on the last Thursday of every month at 3:00pm EST. Join rare advocates to discuss challenges rare patients are facing in South Carolina and connect with others. Click here to register for the meeting(s).

Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for South Carolina’s Rare Action Network to attend your event? Contact the NORD Rare Action team today and learn more. Please check back regularly for news of upcoming events and activities in South Carolina.

In order to make meaningful change in the lives of rare disease patients and their families in the state of South Carolina, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.

State Information

Raymond G. Farmer, Director

South Carolina Department of Insurance
PO Box 100105
Columbia, South Carolina 29202-3105


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

State Health Insurance Consumer Assistance Program

Email for Assistance: [email protected]
or 800-768-3467 (toll free only in SC)

NORD Links


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