Please join Michigan Rare Action Network for Rare Disease Day Advocacy Event on Thursday, March 7, 2019 from 10:30am -12:00pm at the Radisson Hotel Lansing at the Capitol, Banquet room, 2nd floor, 111 North Grand Avenue, Lansing, MI 48933. Patients, families, caregivers, medical professionals and industry representatives are invited to attend this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Michigan. REGISTER HERE
What's Happening Now?
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Michigan’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Michigan.
Michigan needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance or have additional questions on how to take action in Michigan, please contact your State Ambassador, Jen O’Connor.
State Report Card
In this third edition of NORD’s State Policy Report Card we are seeking to expand our analysis to more issues that affect the rare disease community while also providing a more targeted analysis of policies analyzed in previous editions of the report.
Scoring for State Policies
A: State policy meets all desired standards. An A grade is considered the model policy that other states should seek to enact.
B: State policy meets most, but not all desired standards
C: State policy on the given issue meets minimum standards
D: State has some policy in place, but it does not meet the standards of higher tiers
F: State has no policy provision for the relevant issue
Patrick McPharlin, Director
Dept. of Insurance & Financial Services
PO Box 30220
Lansing, Michigan 48909-7720
Complaint Submission- Mail this form to:
DIFS Consumer Services
P.O. Box 30220
Lansing, MI 48909-7720
Email for Assistance: email@example.com
State Health Insurance Consumer Assistance Program
Consumer Assistance Program Email: DIFS-HICAP@Michigan.gov