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What's Happening Now?

Please join Michigan Rare Action Network and Amyloidosis Foundation on Thursday, February 20, 2020 at the Michigan State Capitol, Speaker’s Library, 100 N Capitol Ave, Lansing, MI from 10:30am-12:00pm. Join patients, families, caregivers and other rare disease stakeholders at this important event to learn about the challenges rare disease patients face. You’ll also learn how you can make a difference in the lives of rare disease patients and their families here in Michigan. Lunch will be provided and there is no cost to participate in this event.


RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Michigan’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Michigan.

Michigan needs your help!
Utilize these Rare Action resources to put rare diseases on the map in your state. If you need further assistance  or have additional questions on how to take action in Michigan, please contact your State Ambassador, Sarah Daniels.

State Report Card

In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.

State Information

Patrick McPharlin, Director

Dept. of Insurance & Financial Services
PO Box 30220
Lansing, Michigan 48909-7720


[email protected]

In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Complaint Submission- Mail this form to:

DIFS Consumer Services
P.O. Box 30220
Lansing, MI 48909-7720

Email for Assistance: [email protected]

State Health Insurance Consumer Assistance Program
Consumer Assistance Program Email: [email protected]

Kaiser State Exchange Profile
State Reforum State Profile
State Health Insurance Website


Capitol View Building
201 Townsend Street
Lansing, Michigan 48913


Medicaid Website
Eligibility Requirements

Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources

NORD Links


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