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Kentucky Rare Disease Day Virtual Event

Friday, February 26, 2021
11:30am – 1:00pm CST

Kentucky Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Kentucky legislators and the general public on the challenges rare disease patients face. You will also learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Kentucky.

This year, Kentucky’s Rare Disease Day will focus on the importance of maintaining and expanding access to telehealth services for rare disease patients. Access to telehealth services has rapidly expanded during the COVID-19 pandemic, but many of the policies that have enabled this expanded access are temporary. New laws and regulations are necessary to ensure all patients have permanent access to telehealth services. Join us as we advocate for the positive impact that telehealth services have on the rare disease community!


Patrick Dunegan
Kentucky State Co-Ambassador
[email protected]

Jennifer Dunegan
Kentucky State Co-Ambassador
[email protected]


Robert Myrick
Kentucky Community Engagement Liaison
[email protected]

COVID-19 Resources & Information

State Resource Page

The official Team Kentucky source for information concerning COVID-19

RAN_Megephone_RGBWould you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Kentucky’s Rare Action Network to attend your event? Contact your State Ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Kentucky.

In order to make meaningful change in the lives of rare disease patients and their families in the state of Kentucky, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.

State Information

Nancy G. Atkins, Commissioner

Kentucky Department of Insurance
PO Box 517
Frankfort, Kentucky 40602-0517


In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.

Click Here

Online Complaint Submission

800-595-6053 (KY only)
or 502-564-6034
Email for Assistance: [email protected] or [email protected]

State Health Insurance Consumer Assistance Program

Brian K. Staples, Health Insurance Advocate/Ombudsman
P.O. Box 517
Frankfort, KY 40602

Ombudsman Email: [email protected]
Ombudsman Website

NORD Links


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