Lesley Bennett
Connecticut State Ambassador
[email protected]
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Rare Action Network > Resources for Advocates > State Profiles > Connecticut
Connecticut
Connecticut Rare Disease Day Virtual Event
Friday, February 26, 2021
9:00am – 10:30am EST
Connecticut Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Connecticut legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the Connecticut Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.
What's Happening Now?
Please join the Connecticut Rare Action Network for our monthly virtual rare discussion groups. They are held on the second Tuesday of every month at 12:30pm EST. Join rare advocates to discuss challenges rare patients are facing in Connecticut and connect with others. Click here to register for the meeting(s).
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Connecticut’s Rare Action Network to attend your event? Contact your state ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Connecticut.
In order to make meaningful change in the lives of rare disease patients and their families in the state of Connecticut, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.
State Information
Andrew N. Mais, Commissioner
Connecticut Insurance Department
PO Box 816
Hartford, Connecticut 06142-0816
860-297-3800
In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.
Email for Assistance: [email protected]
800-203-3447
State Health Insurance Consumer Assistance Program
Ted Doolittle, Healthcare Advocate
Office of the Healthcare Advocate
P.O.BOX 1543
Hartford CT,06144
860-331-2441
Consumer Assistance Program Email:
[email protected]
Marketplace Structure: State
Access Health CT
280 Trumbull Street, 15th Floor
Hartford, CT 06103
1-800-318-2596
TTY: 1-855-889-4325
Marketplace Contact: [email protected]
Marketplace Website
Enrollment Options
Plan Information
Estimate My Cost
Benefits Offered Under the Marketplace:
Essential Health Benefits
State-Required Benefits
Kaiser State Exchange Profile
State Reforum State Profile
Medicaid
25 Sigourney Street
Hartford, CT 06106-5033
1-800-842-1508 or 800- 842-4524
Medicaid Website
Eligibility Requirements
Medicaid Fair Hearing Rights
Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources
Provides health coverage for families of children with chronic diseases or disabilities, and those with low household income.
Financial assistance for children with any and all cancer diagnoses.
Hospitals offering free or reduced cost care for patients unable to afford treatment.
Non-profit offering a myriad of services to disabled and chronically ill children.
United Healthcare Children’s Foundation
Widely applicable medical grants offered to families of children under 16 years old.
Office of Protection and Advocacy
Legal group dedicated to protecting and upholding the rights of disabled people in Connecticut – offers include support in filing claims of discrimination or mistreatment.
Advocates offering support to families of children (birth to 26) who are disabled or chronically ill.
