Lesley Bennett
Connecticut State Ambassador
[email protected]
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Rare Action Network > Resources for Advocates > State Profiles > Connecticut
Connecticut
What's Happening Now?
Please join Connecticut Rare Action Network on Friday, February 28, 2020 at the Connecticut State Legislative Office Building, 300 Capitol Avenue, Hartford, CT. Join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Connecticut.
CT RAN in the News!
Tackling the Impossible: Greta Stifel Is Making History for Patients with Rare Cancers
Rare Disease Day 2019:
Sofia Sees Hope: Connecticut Rare Disease Day at the Capitol
WTNH: Rare Disease Day marked at the state Capitol, personal stories front and center
SMA News Today: Connecticut Neurologist Upbeat on New Tehrapies for SMA, Other Disorders
In order to make meaningful change in the lives of rare disease patients and their families in the state of Connecticut, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
State Report Card
In this fifth edition of NORD’s “State of the States Report,” we analyze all 50 states and Washington, D.C., on eight issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background and an explanation of the grading methodology, please download the full report.
State Information
Andrew N. Mais, Commissioner
Connecticut Insurance Department
PO Box 816
Hartford, Connecticut 06142-0816
860-297-3800
In order to get the issues that affect your life addressed, connect with your state representative by using the tool on our website.
Email for Assistance: [email protected]
800-203-3447
State Health Insurance Consumer Assistance Program
Ted Doolittle, Healthcare Advocate
Office of the Healthcare Advocate
P.O.BOX 1543
Hartford CT,06144
860-331-2441
Consumer Assistance Program Email:
[email protected]
Marketplace Structure: State
Access Health CT
280 Trumbull Street, 15th Floor
Hartford, CT 06103
1-800-318-2596
TTY: 1-855-889-4325
Marketplace Contact: [email protected]
Marketplace Website
Enrollment Options
Plan Information
Estimate My Cost
Benefits Offered Under the Marketplace:
Essential Health Benefits
State-Required Benefits
Kaiser State Exchange Profile
State Reforum State Profile
Medicaid
25 Sigourney Street
Hartford, CT 06106-5033
1-800-842-1508 or 800- 842-4524
Medicaid Website
Eligibility Requirements
Medicaid Fair Hearing Rights
Children’s Health Insurance Program (CHIP)
Children’s Health Coverage Resources
Provides health coverage for families of children with chronic diseases or disabilities, and those with low household income.
Financial assistance for children with any and all cancer diagnoses.
Hospitals offering free or reduced cost care for patients unable to afford treatment.
Non-profit offering a myriad of services to disabled and chronically ill children.
United Healthcare Children’s Foundation
Widely applicable medical grants offered to families of children under 16 years old.
Office of Protection and Advocacy
Legal group dedicated to protecting and upholding the rights of disabled people in Connecticut – offers include support in filing claims of discrimination or mistreatment.
Advocates offering support to families of children (birth to 26) who are disabled or chronically ill.
