Connecticut Rare Disease Day
RESCHEDULED to
Thursday, March 23, 2023 from 8:30 am – 12:00 pm
Legislative Office Building, 2nd Floor Atrium
Capitol Avenue, Hartford, CT
There is no cost to participants to attend this event.
This Rare Disease Day is your chance to connect with other people and families living with rare diseases and supporters in Connecticut. During the event, community members – including patients, caregivers, friends, advocates, healthcare professionals, and elected officials – are invited to come together to make connections, learn about the issues facing people living with rare diseases and their families and how you can make a difference. Don’t wait to RSVP as you do not want to miss this opportunity, hosted by NORD and our dedicated Rare Action Network volunteers!
Would you like to volunteer to assist in hosting a local community awareness event? Do you have an opportunity for Connecticut’s RareAction Network to attend your event? Contact your state ambassador today and learn more. Please check back regularly for news of upcoming events and activities in Connecticut.
