The Rare Action Network® offers a quarterly legislative tracker to subscribers with updates on the bills that are important to improving the lives of people and families in the rare disease community. An archive of these alerts are posted below.
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Rare Action Network > Policy > Legislative Tracker
Legislative Tracker
Frequently Asked Questions:
How do I get my state on the list?
Contact Tim Boyd at tboyd@rarediseases.org to get bills specific to the issues you are facing on the list.
What should I do with this information?
Spread the word! Help us increase awareness of the issues to key decision-makers and elected officials in state or regions that can take action to make essential changes. Join the conversation online by following @rarediseases or #rareaction
Click on the links below to download the latest legislative tracking reports.
2018 Spring/Summer Legislative Tracker
2017 Summer Legislative Tracker
2017 Spring Legislative Tracker
September – October, 2016 Legislative Report for Rare Diseases
