The Rare Action Network® offers a quarterly legislative tracker to subscribers with updates on the bills that are important to improving the lives of people and families in the rare disease community. An archive of these alerts are posted below.
Frequently Asked Questions:
How do I get my state on the list?
Contact Danielle Del Carlo at [email protected] to get bills specific to the issues you are facing on the list.
What should I do with this information?
Spread the word! Help us increase awareness of the issues to key decision-makers and elected officials in state or regions that can take action to make essential changes. Join the conversation on Twitter by following @rareaction or @rarediseases or #rareaction
Click on the links below to download the latest legislative tracking reports.