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Rare Action Network Virtual Rare Discussion Groups

Join NORD’s Rare Action Network (RAN) Virtual Rare Discussion Group in your state! Join rare advocates to discuss challenges rare patients are facing and connect with others. These groups will allow us to exchange stories and experiences with those living with and supporting those with rare diseases.  Come ready to share your concerns, ask questions, and hear updates from NORD.

The goal of these discussion groups is to address any topics of concern to you. These meetings are open to all—you do not have to be a RAN member.

Alone we are rare, together we are strong. Please join us and check back regularly as more states are added. Questions? Email [email protected].

2021 Virtual Discussion Group Schedule Coming Soon!

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