Join NORD’s Rare Action Network (RAN) Virtual COVID-19 Discussion Group in your state! The NORD RAN is hosting these meetings to enable the rare disease community to come together during this difficult and unprecedented time. These groups will allow us to exchange stories and experiences with respect to the impact of the COVID-19 pandemic on the lives of those living with and supporting those with rare diseases. Come ready to share your concerns on COVID-19, ask questions, and hear updates from NORD.
Discussion topics will include how this pandemic has affected your rare disease treatment, medication access, and access to telemedicine. But the goal is to address any topics of concern to you. These meetings are open to all—you do not have to be a RAN member.
Alone we are rare, together we are strong. Please join us and check back regularly as more states are added. Questions? Email [email protected].