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Join RAN

Rare Action Network Virtual Rare Discussion Groups

Minnesota

Join NORD’s Rare Action Network (RAN) Virtual Rare Discussion Group in your state! Join rare advocates to discuss challenges rare patients are facing and connect with others. These groups will allow us to exchange stories and experiences with those living with and supporting those with rare diseases.  Come ready to share your concerns, ask questions, and hear updates from NORD.

The goal of these discussion groups is to address any topics of concern to you. These meetings are open to all—you do not have to be a RAN member.

Alone we are rare, together we are strong. Please join us and check back regularly as more states are added. Questions? Email [email protected].

Arkansas

11/16/2020

2:00pm CST

Arkansas

12/21/2020

7:00pm CST

Colorado

Third Thursday of every month.

12:00pm MST

Connecticut

Second Tuesday of every month.

12:30pm EST

Delaware

Third Thursday of every month.

1:00pm EST

Florida

12/16/2020

3:00pm EST

Illinois

Fourth Wednesday of every month.

2:00pm CST

Indiana

11/18/2020

7:00pm EST

Iowa

11/12/2020

7:00pm CST

Kansas

10/28/2020

7:00pm CST

Kansas

11/19/2020

7:00pm CST

Kansas

12/17/2020

7:00pm CST

Kentucky

Third Friday of every month

10:00am EST

Massachusetts

Third Wednesday of every month.

12:00pm EST

Minnesota

First Thursday of every month.

3:00pm CST

New York

12/9/2020

6:30pm EST

North Carolina

10/28/2020

1:30pm EST

North Carolina

12/3/2020

11:00am EST

Ohio

Third Wednesday of every month.

7:00pm EST

Oklahoma

First Wednesday every other month

11:00am CST

South Carolina

Last Thursday of every month

3:00pm EST

Tennessee

Last Friday of every month

10:00am CST

Texas

First Friday of every month

12:00pm CST

Virginia

Second Wednesday every other month. Next meeting November 11, 2020.

12:00pm EST

West Virginia

11/18/2020

6:00pm EST

Wisconsin

11/17/2020

6:00pm CST

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