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Join RAN

Rare Action Network COVID-19 Virtual Discussion Groups

Join NORD’s Rare Action Network (RAN) Virtual COVID-19 Discussion Group in your state! The NORD RAN is hosting these meetings to enable the rare disease community to come together during this difficult and unprecedented time. These groups will allow us to exchange stories and experiences with respect to the impact of the COVID-19 pandemic on the lives of those living with and supporting those with rare diseases.  Come ready to share your concerns on COVID-19, ask questions, and hear updates from NORD.

Discussion topics will include how this pandemic has affected your rare disease treatment, medication access, and access to telemedicine. But the goal is to address any topics of concern to you. These meetings are open to all—you do not have to be a RAN member.

Alone we are rare, together we are strong. Please join us and check back regularly as more states are added. Questions? Email [email protected].

Alaska

5/26/2020

12:00pm AK

Arizona

5/27/2020

6:00pm PST

Georgia

5/22/2020

2:00pm EST

Hawaii

5/26/2020

10:00am HI

Kansas

5/26/2020

7:00pm CST

Maine

5/27/2020

12:30pm EST

Maine

5/27/2020

12:30pm EST

Michigan

5/27/2020

12:00pm EST

Montana

5/28/2020

12:00pm MST

North Dakota

5/28/2020

1:00pm CST

Nebraska

5/26/2020

7:00pm CST

New Mexico

5/27/2020

6:00pm MST

North Carolina

5/26/2020

2:00pm EST

Oklahoma

5/29/2020

2:00pm CST

Oregon

5/28/2020

1:00pm PST

Rhode Island

5/27/2020

12:30pm EST

South Dakota

5/28/2020

1:00pm CST

Vermont

5/27/2020

12:30pm EST

Washington

5/28/2020

1:00pm PST

Previously Held Virtual Discussion Groups

Alabama

5/18/2020

12:00pm CST

Arkansas

5/11/2020

2:00pm CST

California

5/8/2020

2:00pm PST

Colorado

5/19/2020

2:00pm MST

Connecticut

5/12/2020

12:30pm EST

Delaware

4/30/2020

3:00pm EST

Florida

5/6/2020

4:00pm EST

Idaho

5/14/2020

6:00pm MST

Illinois

5/13/2020

1:00pm CST

Indiana

5/20/2020

3:30 PM EST

Iowa

5/14/2020

7:00pm CST

Kentucky

5/8/2020

6:00pm CST

Louisiana

5/19/2020

2:00pm CST

Massachusetts

5/20/2020

7:00pm EST

Minnesota

5/14/2020

3:00pm CST

Mississippi

5/18/2020

12:00pm CST

Missouri

5/19/2020

6:00pm CST

Nevada

5/7/2020

1:00pm PST

New Hampshire

5/20/2020

7:00pm EST

New Jersey

5/12/2020

11:00am EST

New York

5/13/2020

1:00pm EST

Ohio

5/7/2020

7:00pm EST

Pennsylvania

5/21/2020

7:00pm EST

South Carolina

5/14/2020

7:00pm EST

Tennessee

4/28/2020

11:00am CST

Texas

5/8/2020

12:00PM CST

Utah

5/19/2020

2:00PM MST

Virginia

5/12/2020

12:00pm EST

Washington, D.C.

5/11/2020

7:00pm EST

West Virginia

5/12/2020

12:00pm EST

Wyoming

5/14/2020

6:00pm MST

Wisconsin

5/21/2020

6:30pm CST

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