Donate Now

Join RAN

Rare Action Network Virtual Rare Discussion Groups

Minnesota

Join NORD’s Rare Action Network (RAN) Virtual Rare Discussion Group in your state! Join rare advocates to discuss challenges rare patients are facing and connect with others. These groups will allow us to exchange stories and experiences with those living with and supporting those with rare diseases.  Come ready to share your concerns, ask questions, and hear updates from NORD.

The goal of these discussion groups is to address any topics of concern to you. These meetings are open to all—you do not have to be a RAN member.

Alone we are rare, together we are strong. Please join us and check back regularly as more states are added. Questions? Email [email protected].

Arizona

7/29/2020

12:00pm PST

Arizona

9/23/2020

6:00pm PST

Arkansas

7/20/2020

7:00pm CST

Arkansas

8/17/2020

2:00pm CST

Arkansas

9/21//2020

2:00pm CST

Arkansas

10/19/2020

7:00pm CST

Arkansas

11/16/2020

2:00pm CST

Arkansas

12/21/2020

7:00pm CST

California

8/20/2020

10:00am PST

Colorado

Third Thursday of every month.

12:00pm MST

Connecticut

Second Tuesday of every month.

12:30pm EST

Florida

8/19/2020
10/21/2020
12/16/2020

3:00pm EST

Idaho

Last Thursday of every month (no November 2020 meeting).

6:30pm MST

Illinois

Fourth Wednesday of every month.

2:00pm CST

Indiana

7/22/2020

7:00pm EST

Indiana

9/23/2020

7:00pm EST

Indiana

11/18/2020

7:00pm EST

Iowa

7/23/2020

7:00pm CST

Iowa

9/17/2020

7:00pm CST

Iowa

11/12/2020

7:00pm CST

Kentucky

Third Friday of every month

10:00am EST

Massachusetts

Third Wednesday of every month.

12:00pm EST

Minnesota

First Thursday of every month.

3:00pm CST

New Hampshire

9/30/2020

3:00pm EST

North Carolina

7/30/2020

2:00pm EST

North Carolina

9/16/2020

11:00am EST

North Carolina

10/28/2020

1:30pm EST

North Carolina

12/3/2020

11:00am EST

Ohio

Third Wednesday of every month.

7:00pm EST

Oklahoma

First Wednesday every other month (beginning August 5, 2020).

11:00am CST

Texas

First Friday of every month (starting August 2020).

12:00pm CST

Virginia

Second Wednesday of each month (starting August 2020)

12:00pm EST

West Virginia

7/22/2020

12:00pm EST

West Virginia

9/16/2020

6:00pm EST

West Virginia

11/18/2020

12:00pm EST

Wisconsin

7/21/2020

6:00pm CST

Wisconsin

9/19/2020

1:00pm CST

Wisconsin

11/17/2020

6:00pm CST

Previously Held Virtual Discussion Groups

Alabama

5/18/2020

12:00pm CST

Alaska

5/26/2020

12:00pm AK

Arizona

5/27/2020

6:00pm PST

Arkansas

5/11/2020

2:00pm CST

California

5/8/2020

2:00pm PST

Colorado

5/19/2020

2:00pm MST

Connecticut

5/12/2020

12:30pm EST

Delaware

4/30/2020

3:00pm EST

Florida

5/6/2020

4:00pm EST

Georgia

5/22/2020

2:00pm EST

Hawaii

5/26/2020

10:00am HI

Idaho

5/14/2020

6:00pm MST

Illinois

5/13/2020

1:00pm CST

Indiana

5/20/2020

3:30 PM EST

Iowa

5/14/2020

7:00pm CST

Kansas

5/26/2020

7:00pm CST

Kentucky

5/8/2020

6:00pm CST

Louisiana

5/19/2020

2:00pm CST

Maine

5/27/2020

12:30pm EST

Massachusetts

5/20/2020

7:00pm EST

Michigan

5/27/2020

12:00pm EST

Minnesota

5/14/2020

3:00pm CST

Mississippi

5/18/2020

12:00pm CST

Missouri

5/19/2020

6:00pm CST

Montana

5/28/2020

12:00pm MST

Nebraska

5/26/2020

7:00pm CST

Nevada

5/7/2020

1:00pm PST

New Hampshire

5/20/2020

7:00pm EST

New Jersey

5/12/2020

11:00am EST

New Mexico

5/27/2020

6:00pm MST

New York

5/13/2020

1:00pm EST

North Carolina

5/26/2020

2:00pm EST

North Dakota

5/28/2020

1:00pm CST

Ohio

5/7/2020

7:00pm EST

Oregon

5/28/2020

1:00pm PST

Oklahoma

5/29/2020

2:00pm CST

Pennsylvania

5/21/2020

7:00pm EST

Rhode Island

5/27/2020

12:30pm EST

South Carolina

5/14/2020

7:00pm EST

South Dakota

5/28/2020

1:00pm CST

Tennessee

4/28/2020

11:00am CST

Texas

5/8/2020

12:00PM CST

Utah

5/19/2020

2:00PM MST

Vermont

5/27/2020

12:30pm EST

Virginia

5/12/2020

12:00pm EST

Washington

5/28/2020

1:00pm PST

Washington, D.C.

5/11/2020

7:00pm EST

West Virginia

5/12/2020

12:00pm EST

Wyoming

5/14/2020

6:00pm MST

Wisconsin

5/21/2020

6:30pm CST

NORD Links

NORD Logo

Rare Disease Day Logo

Running4Rare Logo