BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//- Rare Action Network® - ECPv6.15.17.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:- Rare Action Network®
X-ORIGINAL-URL:https://rareaction.org
X-WR-CALDESC:Events for - Rare Action Network®
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20250101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=UTC:20260513T120000
DTEND;TZID=UTC:20260513T130000
DTSTAMP:20260513T235452
CREATED:20251209T184924Z
LAST-MODIFIED:20260505T180242Z
UID:10000013-1778673600-1778677200@rareaction.org
SUMMARY:Illinois Rare Disease Commission Meeting
DESCRIPTION:Commission Meetings \nThe Illinois Rare Disease Commission meets monthly\, and you can find additional meeting information below. \nMeetings
URL:https://rareaction.org/event/illinois-rare-disease-commission-meeting-times/
LOCATION:AZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260515T090000
DTEND;TZID=UTC:20260515T130000
DTSTAMP:20260513T235452
CREATED:20260316T202815Z
LAST-MODIFIED:20260325T014227Z
UID:10000050-1778835600-1778850000@rareaction.org
SUMMARY:Living Rare\, Living Stronger Colorado
DESCRIPTION:The National Organization for Rare Disorders (NORD®) invites you to join us in Denver\, Colorado for a day of education and connection. Our Living Rare Forum is designed to help you navigate your life with a rare disease or as a rare caregiver. Each forum features expert speakers\, dynamic educational sessions\, and meaningful community-building opportunities. \nRegister Here \nEvent details: \nDate: Friday\, May 15\, 2026\nTime: 9:00 a.m. to 1:00 p.m.\nLocation: Auraria Campus\, Tivoli – Turnhalle\n900 Auraria Parkway\, Denver\, CO 80204
URL:https://rareaction.org/event/make-connections-build-community-at-living-rare-living-stronger-colorado/
LOCATION:Auraria Campus\, 900 Auraria Parkway\, Denver\, CO\, 80204\, United States
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Screenshot-2026-03-12-111954.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260518T120000
DTEND;TZID=UTC:20260518T130000
DTSTAMP:20260513T235452
CREATED:20251209T195511Z
LAST-MODIFIED:20260505T175201Z
UID:10000022-1779105600-1779109200@rareaction.org
SUMMARY:New Hampshire Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nMeetings are open to the public and are usually held at 29 Hazen Drive\, Concord\, NH\, but the location is subject to change. \nMeetings occur on the 3rd Monday in January\, March\, May\, July\, September\, and November\, from 12:00-1:00pm. \nFor information about attending a meeting\, including confirmation the location\, please contract Bureau of Family Health and Nutrition\, 603-271-4517 \nYou can find the published New Hampshire RDAC meeting times linked below. \nMeetings
URL:https://rareaction.org/event/new-hampshire-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:New Hamp Place\, NH\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260519T100000
DTEND;TZID=UTC:20260519T133000
DTSTAMP:20260513T235452
CREATED:20251209T203000Z
LAST-MODIFIED:20260505T174131Z
UID:10000025-1779184800-1779197400@rareaction.org
SUMMARY:Virginia Rare Disease Council Meeting
DESCRIPTION:Advisory Council Meetings \nThe Virginia Rare Disease Council meets quarterly. \nYou can search for Virginia Rare Disease Council meetings on the Virginia Regulatory Town Hall website. To do so\, simply select “State Board of Health” as the “Regulatory Board” and “All Past and Future” under “Scheduled For”. Finally\, enter “Rare Disease” in the “Meeting Title Partial Match” search box to populate all relevant meetings. \nMeetings \n 
URL:https://rareaction.org/event/virginia-rare-disease-council-meeting-times/
LOCATION:AZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260520T120000
DTEND;TZID=UTC:20260520T130000
DTSTAMP:20260513T235452
CREATED:20251209T184451Z
LAST-MODIFIED:20260505T174525Z
UID:10000011-1779278400-1779282000@rareaction.org
SUMMARY:Georgia Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Georgia RDAC meets virtually\, and you can find their meeting times linked below. \nMeetings
URL:https://rareaction.org/event/georgia-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:AZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260521T090000
DTEND;TZID=UTC:20260521T110000
DTSTAMP:20260513T235452
CREATED:20251209T191351Z
LAST-MODIFIED:20260505T174737Z
UID:10000016-1779354000-1779361200@rareaction.org
SUMMARY:Massachusetts Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Massachusetts RDAC meets virtually\, and you can find additional meeting information linked below. \nMeetings
URL:https://rareaction.org/event/massachusetts-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:AZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260522T150000
DTEND;TZID=UTC:20260522T170000
DTSTAMP:20260513T235452
CREATED:20251209T185413Z
LAST-MODIFIED:20260505T190624Z
UID:10000012-1779462000-1779469200@rareaction.org
SUMMARY:Indiana Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Indiana RDAC hosts virtual meetings\, and additional meeting information can be found below. \nMeetings
URL:https://rareaction.org/event/indiana-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:AZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260528T160000
DTEND;TZID=UTC:20260528T170000
DTSTAMP:20260513T235452
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000040-1779984000-1779987600@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-05-28/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
END:VCALENDAR