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X-ORIGINAL-URL:https://rareaction.org
X-WR-CALDESC:Events for - Rare Action Network®
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DTSTART;TZID=UTC:20260810T120000
DTEND;TZID=UTC:20260810T130000
DTSTAMP:20261014T023957
CREATED:20260630T195527Z
LAST-MODIFIED:20260729T235308Z
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SUMMARY:Students for Rare New Chapter Info Session - August
DESCRIPTION:Are you a collegiate student interested in starting a NORD Students for Rare chapter on campus? Come and learn more about the program and next steps during our New Chapter Info Session! Our August session will take place on August 10 at 12:00 p.m. ET. We look forward to seeing you there!\nRegister Here
URL:https://rareaction.org/event/students-for-rare-new-chapter-info-session-august/
LOCATION:NY
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/06/Students-for-Rare-Info-Session-Social-Graphic-1.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260819T010000
DTEND;TZID=UTC:20260819T140000
DTSTAMP:20261014T023957
CREATED:20260728T212618Z
LAST-MODIFIED:20260729T235117Z
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SUMMARY:Webinar: Understanding Medical Nutrition and Insurance Coverage Challenges
DESCRIPTION:For many rare disease patients\, medical nutrition products are life-sustaining medicine\, yet insurance coverage for medical nutrition is inconsistent and varies widely based on a patient’s diagnosis\, insurance plan type\, and state of residence. During this webinar\, we’ll teach you about the meaning of “medically necessary nutrition products”\, how medical nutrition coverage challenges impact the rare disease community\, and ways you can advocate for improved medical nutrition coverage in your state and at the federal level. \nRegister
URL:https://rareaction.org/event/webinar-understanding-medical-nutrition-and-insurance-coverage-challenges/
LOCATION:NY
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/07/8-19-26-RAN-Webinar.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260827T150000
DTEND;TZID=UTC:20260827T160000
DTSTAMP:20261014T023957
CREATED:20260709T174832Z
LAST-MODIFIED:20260729T235053Z
UID:10000063-1787842800-1787846400@rareaction.org
SUMMARY:Webinar: Innovative Approaches to Improving Your Rare Disease Care
DESCRIPTION:In an era of scientific and technological advances\, rare disease care is changing every day. Join us for a robust panel discussion diving into different approaches to navigate and improve your rare care throughout each step of your journey. \nRegister
URL:https://rareaction.org/event/living-rare-living-stronger-summer-webinar-series-2/
LOCATION:NY
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/07/LRLS-Virtual.png
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