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PRODID:-//- Rare Action Network® - ECPv6.15.17.1//NONSGML v1.0//EN
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X-ORIGINAL-URL:https://rareaction.org
X-WR-CALDESC:Events for - Rare Action Network®
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TZID:UTC
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DTSTART:20250101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260603T100000
DTEND;TZID=UTC:20260603T160000
DTSTAMP:20260526T142354
CREATED:20260421T151044Z
LAST-MODIFIED:20260421T151044Z
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SUMMARY:Rare Disease Symposium
DESCRIPTION:Join the A.J. Anderson Foundation and the Florida Institute for Pediatric Rare Diseases for two days of connection\, research\, and hope in support of children and families affected by rare diseases.
URL:https://rareaction.org/event/rare-disease-symposium/
LOCATION:Innisbrook Resort\, 36750 US Highway 19 North\, Palm Harbor\, FL\, 34684\, United States
ATTACH;FMTTYPE=image/jpeg:https://rareaction.org/wp-content/uploads/2026/04/2026-FSU-AJ-Anderson-Foudation-Event-Graphic.jpg
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260605T093000
DTEND;TZID=UTC:20260605T103000
DTSTAMP:20260526T142354
CREATED:20251209T194446Z
LAST-MODIFIED:20260505T175953Z
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SUMMARY:Nevada Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Nevada RDAC meets on the First Friday of the month on even numbered months at 9:30 AM PST. You can find the Nevada RDAC meeting times linked below. Please click on the Meeting Information for the current year to get further details. \nMeetings \n 
URL:https://rareaction.org/event/nevada-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:AZ
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260608T090000
DTEND;TZID=UTC:20260608T110000
DTSTAMP:20260526T142354
CREATED:20251209T164039Z
LAST-MODIFIED:20260505T181254Z
UID:10000007-1780909200-1780916400@rareaction.org
SUMMARY:Colorado Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nYou can find the Colorado RDAC meeting times linked below. \nMeetings \nThe Colorado Rare Disease Advisory Council welcomes comments from the general public during each meeting. Any member of the public who would like to offer a comment at a meeting may do so during the Public Comment portion of the agenda. Unless otherwise called upon to testify to the RDAC\, members of the public are requested to limit their comments to the Public Comment portion only. \nHow to Provide Public Comment at an RDAC Meeting \nVerbal Public Comment: To provide verbal comments\, please fill out the Google Form prior to each meeting. Public comments will be limited to 3 minutes per person. \nWritten Public Comment: To provide written comments about general RDAC business or agenda items\, please email co.rarediseaseadvisorycouncil@gmail.com. Written comments will be accepted up to 48 hours prior to each meeting. Comments submitted after the 48-hour deadline will be considered for the following meeting.
URL:https://rareaction.org/event/colorado-rdac-meeting-times/
LOCATION:AZ
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260625T160000
DTEND;TZID=UTC:20260625T170000
DTSTAMP:20260526T142354
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000041-1782403200-1782406800@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-06-25/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
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