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X-WR-CALNAME:- Rare Action Network®
X-ORIGINAL-URL:https://rareaction.org
X-WR-CALDESC:Events for - Rare Action Network®
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DTSTART:20250101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260604T090000
DTEND;TZID=UTC:20260604T163000
DTSTAMP:20260610T083659
CREATED:20251209T192731Z
LAST-MODIFIED:20260609T150233Z
UID:10000018-1780563600-1780590600@rareaction.org
SUMMARY:Minnesota Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Minnesota RDAC meets virtually\, and you can find additional meeting information linked below. \nMeetings \nHow to Make a Public Comments during Full Council Meetings \nThe Minnesota Rare Disease Advisory Council values feedback from their community. They dedicate a public comment period during each quarterly full council meeting for members of the public who wish to address the council. If you would like to provide comment\, they ask that you contact them prior to the full council meeting date so that they can provide space. If you have a particular topic you would like to comment on please provide that information to them and your contact information at info@mnraredisease.org.\nIn order to ensure that they can accommodate everyone who may wish to speak\, speaking time is limited to 3 minutes per person.
URL:https://rareaction.org/event/minnesota-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:CA
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260605T100000
DTEND;TZID=UTC:20260605T110000
DTSTAMP:20260610T083659
CREATED:20251209T195511Z
LAST-MODIFIED:20260609T143437Z
UID:10000022-1780653600-1780657200@rareaction.org
SUMMARY:New Hampshire Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Council holds public meetings on the first Friday of each month from January through June\, from 10:00 a.m. to 11:00 a.m. \nMeetings typically take place at 29 Hazen Drive\, Concord\, New Hampshire; however\, the meeting location is subject to change. \nAn online attendance option is also available and may be accessed using the Microsoft Teams Meeting Link. \nFor information about attending a meeting\, including confirmation the location\, please contract Bureau of Family Health and Nutrition\, 603-271-4517 \nYou can find the published New Hampshire RDAC meeting times linked below. \nMeetings
URL:https://rareaction.org/event/new-hampshire-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:New Hamp Place\, NH\, United States
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260609T160000
DTEND;TZID=UTC:20260609T170000
DTSTAMP:20260610T083659
CREATED:20251209T191051Z
LAST-MODIFIED:20260609T143123Z
UID:10000015-1781020800-1781024400@rareaction.org
SUMMARY:Maryland Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Maryland Rare Disease Advisory Council meets monthly on the second Tuesday of the month from 4-5PM. You can find additional meeting time information linked below. \nMeetings
URL:https://rareaction.org/event/maryland-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:CA
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260610T120000
DTEND;TZID=UTC:20260610T130000
DTSTAMP:20260610T083659
CREATED:20251209T184924Z
LAST-MODIFIED:20260609T143038Z
UID:10000013-1781092800-1781096400@rareaction.org
SUMMARY:Illinois Rare Disease Commission Meeting
DESCRIPTION:Commission Meetings \nThe Illinois Rare Disease Commission meets monthly\, and you can find additional meeting information below. \nMeetings
URL:https://rareaction.org/event/illinois-rare-disease-commission-meeting-times/
LOCATION:CA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260617T120000
DTEND;TZID=UTC:20260617T130000
DTSTAMP:20260610T083659
CREATED:20251209T184451Z
LAST-MODIFIED:20260609T144012Z
UID:10000011-1781697600-1781701200@rareaction.org
SUMMARY:Georgia Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Georgia RDAC meets virtually\, and you can find their meeting times linked below. \nMeetings
URL:https://rareaction.org/event/georgia-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:CA
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260617T130000
DTEND;TZID=UTC:20260617T140000
DTSTAMP:20260610T083659
CREATED:20260603T145837Z
LAST-MODIFIED:20260603T145837Z
UID:10000057-1781701200-1781704800@rareaction.org
SUMMARY:Webinar: Effective Lawmaker Engagement for Rare Disease Advocates
DESCRIPTION:Building strong relationships with lawmakers is one of the most effective ways to advance rare disease policy and ensure the needs of our community are heard. The time between legislative sessions can be one of the most valuable opportunities to establish meaningful\, lasting relationships with elected officials and their staff. During this webinar\, we’ll teach you how to build and nourish relationships with your state lawmakers. We’ll also discuss strategies for engaging members of Congress ahead of the 2026 midterm elections when lawmakers are often spending more time in their home districts and seeking opportunities to connect with constituents. \nRegister Here
URL:https://rareaction.org/event/webinar-effective-lawmaker-engagement-for-rare-disease-advocates/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/06/6-17-26-RAN-Webinar-1.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260625T160000
DTEND;TZID=UTC:20260625T170000
DTSTAMP:20260610T083659
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000041-1782403200-1782406800@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-06-25/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
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