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PRODID:-//- Rare Action Network® - ECPv6.15.17.1//NONSGML v1.0//EN
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X-ORIGINAL-URL:https://rareaction.org
X-WR-CALDESC:Events for - Rare Action Network®
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DTSTART:20250101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260326T160000
DTEND;TZID=UTC:20260326T170000
DTSTAMP:20260526T111516
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000038-1774540800-1774544400@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-03-26/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
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DTSTART;TZID=UTC:20260323T183000
DTEND;TZID=UTC:20260323T193000
DTSTAMP:20260526T111516
CREATED:20260316T203648Z
LAST-MODIFIED:20260316T203831Z
UID:10000051-1774290600-1774294200@rareaction.org
SUMMARY:New York RDAC Coalition Meeting
DESCRIPTION:During this session\, NORD staff will present: \n\nLegislative Updates: A deep dive into S1287-B/A1296-B\, legislation that would codify a Rare Disease Advisory Council (RDAC) into law in New York.\nAdvocacy Resources: Key details regarding our latest Action Alerts and upcoming webinars.\nStrategic Next Steps: Clear\, actionable items for grassroots advocates to move the needle.\n\nRegister Here
URL:https://rareaction.org/event/new-york-rdac-coalition-meeting/
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/RDAC-Coalition-Meeting-Graphic-1.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260115T110000
DTEND;TZID=UTC:20260115T120000
DTSTAMP:20260526T111516
CREATED:20251209T171321Z
LAST-MODIFIED:20260311T182658Z
UID:10000010-1768474800-1768478400@rareaction.org
SUMMARY:Florida Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Florida RDAC meets virtually\, and you can find the meeting times linked below. \nMeetings
URL:https://rareaction.org/event/florida-rare-disease-advisory-council-rdac-meeting-times/
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