BEGIN:VCALENDAR
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PRODID:-//- Rare Action Network® - ECPv6.15.17.1//NONSGML v1.0//EN
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METHOD:PUBLISH
X-ORIGINAL-URL:https://rareaction.org
X-WR-CALDESC:Events for - Rare Action Network®
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X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20250101T000000
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END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=UTC:20260625T160000
DTEND;TZID=UTC:20260625T170000
DTSTAMP:20260610T084542
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000041-1782403200-1782406800@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-06-25/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260708T103000
DTEND;TZID=UTC:20260708T140000
DTSTAMP:20260610T084542
CREATED:20251209T193910Z
LAST-MODIFIED:20260609T145947Z
UID:10000020-1783506600-1783519200@rareaction.org
SUMMARY:Missouri Advisory Council on Rare Diseases and Personalized Medicine Meeting
DESCRIPTION:Advisory Council Meetings \nThe Missouri RDAC meets virtually\, and you can find additional meeting information below. \nMeetings \nRegister for Public Comment: \nAny interested party shall be granted the opportunity for clinically relevant public comment for up to three (3) minutes per medication under review by the RDAC. The responsibility of scheduling the presentation shall rest with the interested party\, and registration must be completed prior to the scheduled meeting. Interested parties representing a manufacturer shall be granted three (3) minutes in the aggregate per medication under review by the RDAC. \nRegister 
URL:https://rareaction.org/event/missouri-advisory-council-on-rare-diseases-and-personalized-medicine-rdac-meeting-times/
LOCATION:CA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260710T090000
DTEND;TZID=UTC:20260710T100000
DTSTAMP:20260610T084542
CREATED:20251209T201133Z
LAST-MODIFIED:20260505T181018Z
UID:10000023-1783674000-1783677600@rareaction.org
SUMMARY:South Carolina Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nYou can find the South Carolina RDAC meeting times linked below. Contact SCRDAC@musc.edu for more info. \nMeetings
URL:https://rareaction.org/event/south-carolina-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:CA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260713T090000
DTEND;TZID=UTC:20260713T110000
DTSTAMP:20260610T084542
CREATED:20251209T164039Z
LAST-MODIFIED:20260609T145139Z
UID:10000007-1783933200-1783940400@rareaction.org
SUMMARY:Colorado Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nYou can find the Colorado RDAC meeting times linked below. \nMeetings \nThe Colorado Rare Disease Advisory Council welcomes comments from the general public during each meeting. Any member of the public who would like to offer a comment at a meeting may do so during the Public Comment portion of the agenda. Unless otherwise called upon to testify to the RDAC\, members of the public are requested to limit their comments to the Public Comment portion only. \nHow to Provide Public Comment at an RDAC Meeting \nVerbal Public Comment: To provide verbal comments\, please fill out the Google Form prior to each meeting. Public comments will be limited to 3 minutes per person. \nWritten Public Comment: To provide written comments about general RDAC business or agenda items\, please email co.rarediseaseadvisorycouncil@gmail.com. Written comments will be accepted up to 48 hours prior to each meeting. Comments submitted after the 48-hour deadline will be considered for the following meeting.
URL:https://rareaction.org/event/colorado-rdac-meeting-times/
LOCATION:CA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260719T090000
DTEND;TZID=UTC:20260719T120000
DTSTAMP:20260610T084542
CREATED:20260603T202523Z
LAST-MODIFIED:20260603T202605Z
UID:10000058-1784451600-1784462400@rareaction.org
SUMMARY:Hoops for Hunter Syndrome
DESCRIPTION:Shoot Hoops. Raise Hope. Change Lives. \nJoin Project Alive on July 19 for Hoops for Hunter Syndrome\, a fun-filled basketball event benefiting Project Alive and the Hunter syndrome community! \nDate: July 19\, 2026\nTime: 9:00 AM – 12:00 PM\nLocation: Ranch Sports Facility \nThis special event was inspired by a family’s love for basketball and their determination to create a brighter future for those living with Hunter syndrome. \nWhat you can expect: \n\nBasketball Tournament\nFamily-Friendly Fun\nSupport a Meaningful Cause\nMake a Difference for Rare Disease Families\n\nRegister Here
URL:https://rareaction.org/event/hoops-for-hunter-syndrome/
LOCATION:Ranch Sports Facility\, 16067 Euclid Ave\, Chino\, CA\, 91708\, United States
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/06/Hoops-for-Hunters-Fundraiser-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260722T100000
DTEND;TZID=UTC:20260722T120000
DTSTAMP:20260610T084542
CREATED:20251209T192211Z
LAST-MODIFIED:20260505T175419Z
UID:10000017-1784714400-1784721600@rareaction.org
SUMMARY:Michigan Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Michigan Rare Disease Advisory Council meets quarterly and meetings are open to the public. Please email MDHHS-RareDiseases@michigan.gov for more information.  \nYou can find the upcoming meeting times linked below. \nMeetings
URL:https://rareaction.org/event/michigan-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:CA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260723T090000
DTEND;TZID=UTC:20260723T110000
DTSTAMP:20260610T084542
CREATED:20251209T191351Z
LAST-MODIFIED:20260609T144310Z
UID:10000016-1784797200-1784804400@rareaction.org
SUMMARY:Massachusetts Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Massachusetts RDAC meets virtually\, and you can find additional meeting information linked below. \nMeetings
URL:https://rareaction.org/event/massachusetts-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:CA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260723T160000
DTEND;TZID=UTC:20260723T170000
DTSTAMP:20260610T084542
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000042-1784822400-1784826000@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-07-23/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260807T093000
DTEND;TZID=UTC:20260807T103000
DTSTAMP:20260610T084542
CREATED:20251209T194446Z
LAST-MODIFIED:20260609T145003Z
UID:10000037-1786095000-1786098600@rareaction.org
SUMMARY:Nevada Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Nevada RDAC meets on the First Friday of the month on even numbered months at 9:30 AM PST. You can find the Nevada RDAC meeting times linked below. Please click on the Meeting Information for the current year to get further details. \nMeetings \n 
URL:https://rareaction.org/event/nevada-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:CA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260827T160000
DTEND;TZID=UTC:20260827T170000
DTSTAMP:20260610T084542
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000043-1787846400-1787850000@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-08-27/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260915T110000
DTEND;TZID=UTC:20260915T120000
DTSTAMP:20260610T084542
CREATED:20251209T170154Z
LAST-MODIFIED:20260505T173554Z
UID:10000009-1789470000-1789473600@rareaction.org
SUMMARY:Delaware Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Delaware Rare Disease Advisory Council meets online\, and those meetings are open to the public. If you’d like to attend\, please reference the Public Meeting Calendar for a schedule of upcoming meetings. \nPublic Meeting Calendar \n 
URL:https://rareaction.org/event/delaware-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:CA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260924T160000
DTEND;TZID=UTC:20260924T170000
DTSTAMP:20260610T084542
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000044-1790265600-1790269200@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-09-24/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20261022T160000
DTEND;TZID=UTC:20261022T170000
DTSTAMP:20260610T084542
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000045-1792684800-1792688400@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-10-22/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20261126T160000
DTEND;TZID=UTC:20261126T170000
DTSTAMP:20260610T084542
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000046-1795708800-1795712400@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-11-26/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20261224T160000
DTEND;TZID=UTC:20261224T170000
DTSTAMP:20260610T084542
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000047-1798128000-1798131600@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-12-24/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
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