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PRODID:-//- Rare Action Network® - ECPv6.15.17.1//NONSGML v1.0//EN
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X-WR-CALNAME:- Rare Action Network®
X-ORIGINAL-URL:https://rareaction.org
X-WR-CALDESC:Events for - Rare Action Network®
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X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20250101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260625T160000
DTEND;TZID=UTC:20260625T170000
DTSTAMP:20260506T090631
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000041-1782403200-1782406800@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-06-25/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260708T103000
DTEND;TZID=UTC:20260708T140000
DTSTAMP:20260506T090631
CREATED:20251209T193910Z
LAST-MODIFIED:20260505T172600Z
UID:10000020-1783506600-1783519200@rareaction.org
SUMMARY:Missouri Advisory Council on Rare Diseases and Personalized Medicine Meeting
DESCRIPTION:Advisory Council Meetings \nThe Missouri RDAC meets virtually\, and you can find additional meeting information below. \nMeetings \nRegister for Public Comment: \nAny interested party shall be granted the opportunity for clinically relevant public comment for up to three (3) minutes per medication under review by the RDAC. The responsibility of scheduling the presentation shall rest with the interested party\, and registration must be completed prior to the scheduled meeting. Interested parties representing a manufacturer shall be granted three (3) minutes in the aggregate per medication under review by the RDAC. \nRegister 
URL:https://rareaction.org/event/missouri-advisory-council-on-rare-diseases-and-personalized-medicine-rdac-meeting-times/
LOCATION:AZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260710T090000
DTEND;TZID=UTC:20260710T100000
DTSTAMP:20260506T090631
CREATED:20251209T201133Z
LAST-MODIFIED:20260505T181018Z
UID:10000023-1783674000-1783677600@rareaction.org
SUMMARY:South Carolina Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nYou can find the South Carolina RDAC meeting times linked below. Contact SCRDAC@musc.edu for more info. \nMeetings
URL:https://rareaction.org/event/south-carolina-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:AZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260716T090000
DTEND;TZID=UTC:20260716T163000
DTSTAMP:20260506T090631
CREATED:20251209T192731Z
LAST-MODIFIED:20260505T190202Z
UID:10000018-1784192400-1784219400@rareaction.org
SUMMARY:Minnesota Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Minnesota RDAC meets virtually\, and you can find additional meeting information linked below. \nMeetings \nHow to Make a Public Comments during Full Council Meetings \nThe Minnesota Rare Disease Advisory Council values feedback from their community. They dedicate a public comment period during each quarterly full council meeting for members of the public who wish to address the council. If you would like to provide comment\, they ask that you contact them prior to the full council meeting date so that they can provide space. If you have a particular topic you would like to comment on please provide that information to them and your contact information at info@mnraredisease.org.\nIn order to ensure that they can accommodate everyone who may wish to speak\, speaking time is limited to 3 minutes per person.
URL:https://rareaction.org/event/minnesota-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:AZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260722T100000
DTEND;TZID=UTC:20260722T120000
DTSTAMP:20260506T090631
CREATED:20251209T192211Z
LAST-MODIFIED:20260505T175419Z
UID:10000017-1784714400-1784721600@rareaction.org
SUMMARY:Michigan Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Michigan Rare Disease Advisory Council meets quarterly and meetings are open to the public. Please email MDHHS-RareDiseases@michigan.gov for more information.  \nYou can find the upcoming meeting times linked below. \nMeetings
URL:https://rareaction.org/event/michigan-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:AZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260723T160000
DTEND;TZID=UTC:20260723T170000
DTSTAMP:20260506T090631
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000042-1784822400-1784826000@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-07-23/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260827T160000
DTEND;TZID=UTC:20260827T170000
DTSTAMP:20260506T090631
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000043-1787846400-1787850000@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-08-27/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260915T110000
DTEND;TZID=UTC:20260915T120000
DTSTAMP:20260506T090631
CREATED:20251209T170154Z
LAST-MODIFIED:20260505T173554Z
UID:10000009-1789470000-1789473600@rareaction.org
SUMMARY:Delaware Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Delaware Rare Disease Advisory Council meets online\, and those meetings are open to the public. If you’d like to attend\, please reference the Public Meeting Calendar for a schedule of upcoming meetings. \nPublic Meeting Calendar \n 
URL:https://rareaction.org/event/delaware-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:AZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260924T160000
DTEND;TZID=UTC:20260924T170000
DTSTAMP:20260506T090631
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000044-1790265600-1790269200@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-09-24/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20261022T160000
DTEND;TZID=UTC:20261022T170000
DTSTAMP:20260506T090631
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000045-1792684800-1792688400@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-10-22/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20261126T160000
DTEND;TZID=UTC:20261126T170000
DTSTAMP:20260506T090631
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000046-1795708800-1795712400@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-11-26/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20261224T160000
DTEND;TZID=UTC:20261224T170000
DTSTAMP:20260506T090631
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000047-1798128000-1798131600@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-12-24/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
END:VCALENDAR