BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//- Rare Action Network® - ECPv6.15.17.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:- Rare Action Network®
X-ORIGINAL-URL:https://rareaction.org
X-WR-CALDESC:Events for - Rare Action Network®
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20250101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=UTC:20260423T160000
DTEND;TZID=UTC:20260423T170000
DTSTAMP:20260514T050419
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000039-1776960000-1776963600@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-04-23/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260408T080000
DTEND;TZID=UTC:20260408T100000
DTSTAMP:20260514T050419
CREATED:20260318T192313Z
LAST-MODIFIED:20260331T205448Z
UID:10000054-1775635200-1775642400@rareaction.org
SUMMARY:Vermont Advocacy Day
DESCRIPTION:Join NORD’s Vermont Rare Action Network (RAN) for an advocacy event in Montpelier at the State House on Wednesday\, April 8\, 2026. This is your chance to meet  face-to-face with your legislators and advocate for H.46 – the bill to create a Rare Disease Advisory Council (RDAC) in Vermont. During this event\, we will have a table display in the café\, and we’ll be providing information to lawmakers on rare diseases and our RDAC bill. Vermont advocates are invited to join us to help spread awareness! \nEvent details:  \nDate: Wednesday\, April 8\, 2026\nTime: 8:00 a.m. to 10:00 a.m.\nLocation: Vermont State House Cafeteria\, 115 State St.\, Montpelier\, VT 05602 \nRegister Here
URL:https://rareaction.org/event/vermont-advocacy-day-2/
LOCATION:Vermont State House\, 115 State Street\, Montpelier\, VT\, 05602\, United States
ATTACH;FMTTYPE=image/jpeg:https://rareaction.org/wp-content/uploads/2026/03/VT.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260326T160000
DTEND;TZID=UTC:20260326T170000
DTSTAMP:20260514T050419
CREATED:20260313T181848Z
LAST-MODIFIED:20260325T014648Z
UID:10000038-1774540800-1774544400@rareaction.org
SUMMARY:NORD Volunteer Meeting
DESCRIPTION:Are you interested in volunteering with NORD? Join us for this virtual meeting to learn about current volunteer and advocacy opportunities. We host this meeting on the last Thursday of every month at 4pm ET. \nRegister Here
URL:https://rareaction.org/event/nord-volunteer-meeting/2026-03-26/
LOCATION:Zoom Meeting\, Online
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/Volunteer-Meeting-Social-Media-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260323T183000
DTEND;TZID=UTC:20260323T193000
DTSTAMP:20260514T050419
CREATED:20260316T203648Z
LAST-MODIFIED:20260316T203831Z
UID:10000051-1774290600-1774294200@rareaction.org
SUMMARY:New York RDAC Coalition Meeting
DESCRIPTION:During this session\, NORD staff will present: \n\nLegislative Updates: A deep dive into S1287-B/A1296-B\, legislation that would codify a Rare Disease Advisory Council (RDAC) into law in New York.\nAdvocacy Resources: Key details regarding our latest Action Alerts and upcoming webinars.\nStrategic Next Steps: Clear\, actionable items for grassroots advocates to move the needle.\n\nRegister Here
URL:https://rareaction.org/event/new-york-rdac-coalition-meeting/
LOCATION:AZ
ATTACH;FMTTYPE=image/png:https://rareaction.org/wp-content/uploads/2026/03/RDAC-Coalition-Meeting-Graphic-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260115T110000
DTEND;TZID=UTC:20260115T120000
DTSTAMP:20260514T050419
CREATED:20251209T171321Z
LAST-MODIFIED:20260311T182658Z
UID:10000010-1768474800-1768478400@rareaction.org
SUMMARY:Florida Rare Disease Advisory Council (RDAC) Meeting
DESCRIPTION:Advisory Council Meetings \nThe Florida RDAC meets virtually\, and you can find the meeting times linked below. \nMeetings
URL:https://rareaction.org/event/florida-rare-disease-advisory-council-rdac-meeting-times/
LOCATION:AZ
END:VEVENT
END:VCALENDAR